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- Title
Pediatric liver transplant patients' transition to adulthood: Patient and parent experiences.
- Authors
Sarigol Ordin, Yaprak; Karayurt, Özgül; Ünek, Tarkan; Astarcıoğlu, İbrahim
- Abstract
This qualitative research study describes the experiences of child and adolescent liver transplant recipients and their parents during the patients' transition to adulthood. Data were collected from pediatric liver transplant recipients and their parents during individual interviews, and these were later analyzed using conventional content analysis. Seven main themes emerged: coping, self-management, body image, social relationships, academic life, work life, and live donors. Study results revealed that the patients who received liver transplants during their childhood and adolescence used both effective and ineffective strategies to cope with the difficulties they faced during the transition period into adulthood. The parents experienced many problems: on learning of their child's need for a transplant, parents were advised that they should consider becoming a live donor. This very difficult decision was a source of great stress and required serious consideration. After transplantation the parents wanted their children to have autonomy but could not encourage them because of concerns for their health.
- Subjects
TURKEY; ACADEMIC achievement; ACADEMIC medical centers; PSYCHOLOGICAL adaptation; ADOLESCENCE; AUTONOMY (Psychology); BODY image; CHILD development; CONTENT analysis; EMPLOYMENT; EXPERIENCE; HEALTH status indicators; INTERVIEWING; LIVER transplantation; RESEARCH methodology; PATIENT-family relations; ORGAN donors; PARENTS; HEALTH self-care; SOCIAL networks; SOCIAL participation; TRANSPLANTATION of organs, tissues, etc.; WORK; QUALITATIVE research; JUDGMENT sampling; SOCIAL support; EDUCATIONAL attainment; THEMATIC analysis; DESCRIPTIVE statistics
- Publication
Nursing & Health Sciences, 2017, Vol 19, Issue 3, p393
- ISSN
1441-0745
- Publication type
Article
- DOI
10.1111/nhs.12358