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- Title
Barriers to Parental Empowerment in the Context of Multidisciplinary Collaboration on Behalf of Preschool Children with Disabilities.
- Authors
Cameron, David Lansing
- Abstract
The purpose of this study was to explore the role of parents in multidisciplinary collaboration on behalf of their preschool-aged children with disabilities from the theoretical perspective of empowerment. The study employed a multiple-case study design, including twenty-six individual and two focus group interviews with parents and professionals supporting six children and their families. Three interconnected themes emerged from the analysis. First, parents struggled with navigating a system that was perceived as rigid and cumbersome. Second, parents often found themselves in the position of having to 'police' the professionals involved in supporting them. Third, parents expressed a desire to 'just be parents' and relinquish a degree of control to professionals. Findings highlight central dilemmas associated with the goal and process of empowerment in the provision of social, educational, and health-related support.
- Subjects
PARENTS of children with disabilities; SELF-efficacy; PRESCHOOL children; DISEASES; COLLECTIVE action; PRESCHOOL teachers; SPECIAL education educators; CHILD care workers; PUBLIC health nurses; FOCUS groups; INTERPROFESSIONAL relations; INTERVIEWING; CASE studies; PARENTING; PARENTS; CHILDREN with disabilities; SOCIAL support; THEMATIC analysis; PARENT attitudes
- Publication
Scandinavian Journal of Disability Research, 2018, Vol 20, Issue 1, p277
- ISSN
1501-7419
- Publication type
Article
- DOI
10.16993/sjdr.65