We found a match
Your institution may have access to this item. Find your institution then sign in to continue.
- Title
Challenges of Implementation of the National Phenylketonuria Screening Program in Iran: A Qualitative Study.
- Authors
Heidari, Alireza; Arab, Mohammad; Etemad, Koorosh; Damari, Behzad; Kabir, Mohammad Javad
- Abstract
Introduction: Newborn screening (NBS) is a public health measure aimed at identification of early cases, management of afflicted infants, and making efforts to reduce the morbidity and mortality among newborns. All countries may face challenges in implementation of screening programs. The present study aimed to determine the challenges of implementation of the National Phenylketonuria (PKU) Screening Program in Iran. Methods: In this qualitative study, 38 health policymakers, managers, and PKU experts in Iran were purposively selected as the respondents in 2015. The semi-structured interview was used for collecting the required data and information. After transcription of interviews, their content was analyzed using framework analysis. Results: The results were categorized into five main themes and 22 subthemes. The main themes extracted from data were management challenges, diagnosis challenges, treatment challenges, care challenges, and patients' family problems. Each category consisted of several subthemes. Conclusion: Considering the challenges of implementing this program, some measures such as increased stability of managers in the health system, greater interaction of the Ministry of Health and Medical Education with the heath stakeholders, improving the level of parents' awareness, the use of efficient information systems, support and legal backing for requiring parents who refuse newborn screening for various reasons, and appropriate insurance coverage seem necessary to be taken.
- Subjects
IRAN; CONCEPTUAL structures; CONTENT analysis; HEALTH education; NEWBORN screening; INSURANCE; INTERVIEWING; LITERACY; RESEARCH methodology; CASE studies; MEDICAL screening; PUBLIC health; RELIABILITY (Personality trait); RESEARCH evaluation; TEAMS in the workplace; QUALITATIVE research; DATA analysis; LITERATURE reviews; CONTENT mining
- Publication
Electronic Physician, 2016, Vol 8, Issue 10, p3048
- ISSN
2008-5842
- Publication type
Article
- DOI
10.19082/3048