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- Title
"What Services?": Stakeholders' Perceived Unmet Support Needs for Parents With Neurological Disorders.
- Authors
Pituch, Evelina; Ben Lagha, Rym; Aunos, Marjorie; Cormier, Tiffanie; Carrier, Annie; Gagnon, Cynthia; Gilbert, Véronique; Dominique, Aysha; Duquette, Antoine; Turcotte, Marie; Wakil, Rose-Marie; Bottari, Carolina
- Abstract
Background. Knowledge about the needs of parents with neurological disorders who take care of young children is limited. Purpose. The overall aim of this qualitative study was to explore the perceived unmet parent needs, current supports, and potential solutions to optimize supports of parents with neurological disorders in early childhood in a Canadian setting. Method. Focus groups and individual interviews with parents (n = 8), spouses (n = 5), rehabilitation clinicians (n = 8), community partners (n = 7), and researchers (n = 7) were conducted with a total of 35 participants recruited using convenience sampling. Inductive iterative thematic analysis was performed. Findings. The participants identified the need for society to officially recognize parenting with disabilities, adjust public policies, increase the scope of public programs, consider child development and family well-being, and have barrier-free communities. Conclusion. Providing customized solutions that will adequately fill perceived service gaps is of utmost importance to address these families' needs.
- Subjects
CANADA; QUALITATIVE research; FOCUS groups; RESEARCH funding; INTERVIEWING; SPOUSES; STATISTICAL sampling; PARENT attitudes; DESCRIPTIVE statistics; NEUROLOGICAL disorders; THEMATIC analysis; RESEARCH; SOCIAL support; MEDICAL needs assessment; NEEDS assessment
- Publication
Canadian Journal of Occupational Therapy, 2024, Vol 91, Issue 2, p160
- ISSN
0008-4174
- Publication type
Article
- DOI
10.1177/00084174231190765