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- Title
Voice of a caregiver: call for action for multidisciplinary teams in the care for children with atypical hemolytic uremic syndrome.
- Authors
Burke, Linda; Sethi, Sidharth Kumar; Boyer, Olivia; Licht, Christoph; McCulloch, Mignon; Shah, Raghav; Luyckx, Valerie A.; Raina, Rupesh
- Abstract
An editorial highlights the pressing need for multidisciplinary teams in caring for children with atypical hemolytic uremic syndrome (aHUS). It emphasizes the challenges faced by patients and families due to the rarity and complexity of the disease, leading to delays in accurate diagnosis and treatment. It stresses the importance of prompt and thorough diagnosis, particularly given the urgent therapeutic implications of aHUS.
- Subjects
HEMOLYTIC-uremic syndrome diagnosis; HEMOLYTIC-uremic syndrome treatment; THERAPEUTIC use of monoclonal antibodies; DISEASE management; HEMOLYTIC-uremic syndrome; PSYCHOLOGY of caregivers; HEALTH promotion; HEALTH care teams; CHILDREN
- Publication
Pediatric Nephrology, 2024, Vol 39, Issue 7, p1961
- ISSN
0931-041X
- Publication type
Editorial
- DOI
10.1007/s00467-023-06158-8