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- Title
Parents' experiences of diagnosis and care following the birth of a child with cleft lip and/or palate.
- Authors
Costa, Bruna; Williams, Jennifer R; Martindale, Anna; Stock, Nicola M
- Abstract
Background: Receiving the news that their child has a health condition, such as a cleft lip and/or palate (CL/P), can have a considerable psychological impact on parents, yet research has highlighted parental dissatisfaction and service-related issues. Aims: To investigate the experiences of parents of children born with CL/P in relation to postnatal diagnosis and neonatal care. Method: Data were collected from 470 parents using an online mixed-methods survey. Findings: The majority of participants received their diagnosis and postnatal care from a midwife. Many (61%) were satisfied with their overall diagnostic experience; however, participants also perceived a lack of sensitivity, knowledge and empathy from hospital staff. Further issues were raised regarding the implications of a 'delayed' diagnosis including feeding difficulties. Conclusion: Better training and support for midwives is recommended to address the challenges associated with the postnatal diagnosis and neonatal care of children with CL/P.
- Subjects
ATTITUDE (Psychology); CLEFT palate; CLEFT lip; CLINICAL competence; CONTENT analysis; DIAGNOSIS; EMPATHY; INFANT care; INFANT nutrition; RESEARCH methodology; MEDICAL quality control; MEDICAL errors; MEDICAL personnel; PARENTS of children with disabilities; PUERPERIUM; RESEARCH funding; SATISFACTION; SURVEYS; THERAPEUTICS; MIDWIFERY; QUALITATIVE research; QUANTITATIVE research; SOCIAL support; NONPROFESSIONAL occupations; PARENT attitudes; HEALTH literacy; PATIENTS' families; DESCRIPTIVE statistics; PSYCHOLOGY
- Publication
British Journal of Midwifery, 2019, Vol 27, Issue 3, p151
- ISSN
0969-4900
- Publication type
Article
- DOI
10.12968/bjom.2019.27.3.151