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Coronavirus Disease among Persons with Sickle Cell Disease, United States, March 20-May 21, 2020.
Published in:
2020
By:
- Panepinto, Julie A.;
- Brandow, Amanda;
- Mucalo, Lana;
- Yusuf, Fouza;
- Singh, Ashima;
- Taylor, Bradley;
- Woods, Katherine;
- Payne, Amanda B.;
- Peacock, Georgina;
- Schieve, Laura A.
Publication type:
journal article
Increased prevalence of potential right-to-left shunting in children with sickle cell anaemia and stroke.
Published in:
British Journal of Haematology, 2017, v. 176, n. 2, p. 300, doi. 10.1111/bjh.14391
By:
- Dowling, Michael M.;
- Quinn, Charles T.;
- Ramaciotti, Claudio;
- Kanter, Julie;
- Osunkwo, Ifeyinwa;
- Inusa, Baba;
- Iyer, Rathi;
- Kwiatkowski, Janet L.;
- Johnson, Clarissa;
- Rhodes, Melissa;
- Owen, William;
- Strouse, John J.;
- Panepinto, Julie A.;
- Neumayr, Lynne;
- Sarnaik, Sharada;
- Plumb, Patricia A.;
- Dlamini, Nomazulu;
- Kirkham, Fenella;
- Hynan, Linda S.;
- Benton, Melody S.
Publication type:
Article
Substance P is increased in patients with sickle cell disease and associated with haemolysis and hydroxycarbamide use.
Published in:
British Journal of Haematology, 2016, v. 175, n. 2, p. 237, doi. 10.1111/bjh.14300
By:
- Brandow, Amanda M.;
- Wandersee, Nancy J.;
- Dasgupta, Mahua;
- Hoffmann, Raymond G.;
- Hillery, Cheryl A.;
- Stucky, Cheryl L.;
- Panepinto, Julie A.
Publication type:
Article
Academic Attainment Findings in Children With Sickle Cell Disease.
Published in:
2013
By:
- Epping, Amanda S.;
- Myrvik, Matthew P.;
- Newby, Robert F.;
- Panepinto, Julie A.;
- Brandow, Amanda M.;
- Scott, J. Paul
Publication type:
Journal Article
Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module.
Published in:
2017
By:
- Panepinto, Julie A.;
- Scott, J. Paul;
- Badaki-Makun, Oluwakemi;
- Darbari, Deepika S.;
- Chumpitazi, Corrie E.;
- Airewele, Gladstone E.;
- Ellison, Angela M.;
- Smith-Whitley, Kim;
- Mahajan, Prashant;
- Sarnaik, Sharada A.;
- Casper, T Charles;
- Cook, Larry J.;
- Leonard, Julie;
- Hulbert, Monica L.;
- Powell, Elizabeth C.;
- Liem, Robert I.;
- Hickey, Robert;
- Krishnamurti, Lakshmanan;
- Hillery, Cheryl A.;
- Brousseau, David C.
Publication type:
journal article
3245 Comparison of Health Outcomes in Adolescent and Young Adult (AYA) Oncology Patients Treated at a Pediatric versus Adult Institute.
Published in:
2019
By:
- Moskop, Amy;
- Panepinto, Julie;
- Dobrozsi, Sadie
Publication type:
Abstract
Hydroxycarbamide in children with sickle cell anaemia after first‐dose vs. chronic therapy: pharmacokinetics and predictive models for drug exposure.
Published in:
British Journal of Clinical Pharmacology, 2018, v. 84, n. 7, p. 1478, doi. 10.1111/bcp.13426
By:
- Estepp, Jeremie H.;
- Wiczling, Paweł;
- Moen, Joseph;
- Kang, Guolian;
- Mack, Joana Marie;
- Liem, Robert;
- Panepinto, Julie A.;
- Garg, Uttam;
- Kearns, Gregory;
- Neville, Kathleen A.
Publication type:
Article
Improving Communication between Doctors and Parents after Newborn Screening.
Published in:
Wisconsin Medical Journal, 2011, v. 110, n. 5, p. 221
By:
- Farrell, Michael H.;
- Christopher, Stephanie A.;
- Tluczek, Audrey;
- Kennedy-Parker, Karen;
- La Pean, Alison;
- Eskra, Kerry;
- Collins, Jenelle;
- Hoffman, Gary;
- Panepinto, Julie;
- Farrell, Philip M.
Publication type:
Article
Parental Perception of Quality of Hospital Care for Children with Sickle Cell Disease.
Published in:
Wisconsin Medical Journal, 2008, v. 107, n. 3, p. 131
By:
- Kam, Jared;
- Panepinto, Julie A.;
- Brandow, Amanda M.;
- Brousseau, David C.
Publication type:
Article
Parental Perception of Quality of Hospital Care for Children with Sickle Cell Disease.
Published in:
Wisconsin Medical Journal, 2008, v. 107, n. 3, p. 131
By:
- Kam, Jared;
- Panepinto, Julie A.;
- Brandow, Amanda M.;
- Brousseau, David C.
Publication type:
Article
Impact of pediatric cancer on family relationships.
Published in:
Cancer Medicine, 2018, v. 7, n. 5, p. 1680, doi. 10.1002/cam4.1393
By:
- Erker, Craig;
- Yan, Ke;
- Zhang, Liyun;
- Bingen, Kristin;
- Flynn, Kathryn E.;
- Panepinto, Julie
Publication type:
Article
Transition From Pediatric to Adult Care for Patients With Sickle Cell Disease.
Published in:
2010
By:
- Brousseau, David C.;
- Panepinto, Julie A.;
- Steiner, Claudia A.
Publication type:
Letter
Acute Care Utilization and Rehospitalizations for Sickle Cell Disease.
Published in:
JAMA: Journal of the American Medical Association, 2010, v. 303, n. 13, p. 1288, doi. 10.1001/jama.2010.378
By:
- Brousseau, David C.;
- Owens, Pamela L.;
- Mosso, Andrew L.;
- Panepinto, Julie A.;
- Steiner, Claudia A.
Publication type:
Article
Anxiety and Depressive Symptoms in Juvenile Idiopathic Arthritis Correlate With Pain and Stress Using PROMIS Measures.
Published in:
2022
By:
- Fair, Danielle C.;
- Nocton, James J.;
- Panepinto, Julie A.;
- Ke Yan;
- Jian Zhang;
- Rodriguez, Martha;
- Olson, Judyann;
- Yan, Ke;
- Zhang, Jian
Publication type:
journal article
Testing the feasibility of eliciting preferences for health states from adolescents using direct methods.
Published in:
2018
By:
- Crump, R. Trafford;
- Lau, Ryan;
- Cox, Elizabeth;
- Currie, Gillian;
- Panepinto, Julie
Publication type:
journal article
The Effect of Magnesium on Length of Stay for Pediatric Sickle Cell Pain Crisis.
Published in:
Academic Emergency Medicine, 2004, v. 11, n. 9, p. 968, doi. 10.1197/j.aem.2004.04.009
By:
- Brousseau, David C.;
- Scott, J. Paul;
- Hillery, Cheryl A.;
- Panepinto, Julie A.
Publication type:
Article
Population pharmacokinetics of hydroxyurea for children and adolescents with sickle cell disease.
Published in:
Journal of Clinical Pharmacology, 2014, v. 54, n. 9, p. 1016, doi. 10.1002/jcph.303
By:
- Wiczling, Paweł;
- Liem, Robert I.;
- Panepinto, Julie A.;
- Garg, Uttam;
- Abdel‐Rahman, Susan M.;
- Kearns, Gregory L.;
- Neville, Kathleen A.
Publication type:
Article
Red blood cell transfusions during sickle cell anemia vaso-occlusive crises: a report from the magnesium in crisis (MAGiC) study.
Published in:
2017
By:
- Hulbert, Monica L.;
- Panepinto, Julie A.;
- Scott, J. Paul;
- Liem, Robert I.;
- Cook, Lawrence J.;
- Simmons, Timothy;
- Brousseau, David C.
Publication type:
journal article
The ASH‐ASPHO Choosing Wisely Campaign: 5 hematologic tests and treatments to question.
Published in:
Pediatric Blood & Cancer, 2021, v. 68, n. 8, p. 1, doi. 10.1002/pbc.28967
By:
- O'Brien, Sarah H.;
- Badawy, Sherif M.;
- Rotz, Seth J.;
- Shah, Mona D.;
- Makarski, Julie;
- Bercovitz, Rachel S.;
- Hogan, Mary‐Jane S.;
- Luchtman‐Jones, Lori;
- Panepinto, Julie A.;
- Priola, Ginna M.;
- Witmer, Char M.;
- Wolfson, Julie A.;
- Yee, Marianne;
- Hicks, Lisa K.
Publication type:
Article
Recommendation to reality: Closing the transcranial Doppler screening gap for children with sickle cell anemia.
Published in:
Pediatric Blood & Cancer, 2021, v. 68, n. 2, p. 1, doi. 10.1002/pbc.28831
By:
- Singh, Ashima;
- Danda, Vanaja;
- Van Swol, Laura;
- Scott, J. Paul;
- Brandow, Amanda M.;
- Panepinto, Julie A.
Publication type:
Article
Neuropathic pain is associated with poor health-related quality of life in adolescents with sickle cell disease: A preliminary report.
Published in:
2020
By:
- Román, Marisa E.;
- Highland, Janelle;
- Retherford, Dawn;
- Pan, Amy Y.;
- Panepinto, Julie A.;
- Brandow, Amanda M.
Publication type:
journal article
Cognitive functioning, patient health communication, and worry mediate pain predictive effects on health‐related quality of life in youth with sickle cell disease.
Published in:
Pediatric Blood & Cancer, 2020, v. 67, n. 11, p. 1, doi. 10.1002/pbc.28680
By:
- Varni, James W.;
- Panepinto, Julie A.
Publication type:
Article
Can PROMIS domains of pain and physical functioning detect changes in health over time for children with sickle cell disease?
Published in:
2020
By:
- Singh, Ashima;
- Dasgupta, Mahua;
- Simpson, Pippa M.;
- Brousseau, David C.;
- Panepinto, Julie A.
Publication type:
journal article
Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease.
Published in:
2019
By:
- Singh, Ashima;
- DasGupta, Mahua;
- Simpson, Pippa M.;
- Panepinto, Julie A.
Publication type:
journal article
Parents' pain medication underdosing is associated with more emergency department visits in sickle cell disease.
Published in:
2018
By:
- Morrison, Andrea K.;
- Myrvik, Matthew P.;
- Brousseau, David C.;
- Drendel, Amy L.;
- Scott, J. Paul;
- Visotcky, Alexis;
- Panepinto, Julie A.
Publication type:
journal article
Child and parent preferences for graphical display of patient-reported outcome data.
Published in:
2017
By:
- Dobrozsi, Sarah;
- Panepinto, Julie
Publication type:
journal article
Patient-reported health status during pediatric cancer treatment.
Published in:
Pediatric Blood & Cancer, 2017, v. 64, n. 4, p. n/a, doi. 10.1002/pbc.26295
By:
- Dobrozsi, Sarah;
- Yan, Ke;
- Hoffmann, Raymond;
- Panepinto, Julie
Publication type:
Article
Patient-reported health status during pediatric cancer treatment.
Published in:
2016
By:
- Dobrozsi, Sarah;
- Yan, Ke;
- Hoffmann, Raymond;
- Panepinto, Julie
Publication type:
journal article
Early insights into the neurobiology of pain in sickle cell disease: A systematic review of the literature.
Published in:
2015
By:
- Brandow, Amanda M.;
- Farley, Rebecca A.;
- Panepinto, Julie A.
Publication type:
journal article
Intravenous magnesium for pediatric sickle cell vaso-occlusive crisis: Methodological issues of a randomized controlled trial.
Published in:
Pediatric Blood & Cancer, 2014, v. 61, n. 6, p. 1049, doi. 10.1002/pbc.24925
By:
- Badaki‐Makun, Oluwakemi;
- Scott, J. Paul;
- Panepinto, Julie A.;
- Casper, T. Charles;
- Hillery, Cheryl A.;
- Dean, J. Michael;
- Brousseau, David C.
Publication type:
Article
Vitamin B12 deficiency: The great masquerader.
Published in:
Pediatric Blood & Cancer, 2014, v. 61, n. 4, p. 753, doi. 10.1002/pbc.24784
By:
- Dobrozsi, Sarah;
- Flood, Veronica H.;
- Panepinto, Julie;
- Scott, J. Paul;
- Brandow, Amanda
Publication type:
Article
Neuropathic pain in patients with sickle cell disease.
Published in:
Pediatric Blood & Cancer, 2014, v. 61, n. 3, p. 512, doi. 10.1002/pbc.24838
By:
- Brandow, Amanda M.;
- Farley, Rebecca A.;
- Panepinto, Julie A.
Publication type:
Article
PedsQL™ Multidimensional Fatigue Scale in sickle cell disease: feasibility, reliability, and validity.
Published in:
2014
By:
- Panepinto, Julie A;
- Torres, Sylvia;
- Bendo, Cristiane B;
- McCavit, Timothy L;
- Dinu, Bogdan;
- Sherman-Bien, Sandra;
- Bemrich-Stolz, Christy;
- Varni, James W
Publication type:
journal article
PedsQL™ multidimensional fatigue scale in sickle cell disease: Feasibility, reliability, and validity.
Published in:
Pediatric Blood & Cancer, 2014, v. 61, n. 1, p. 171, doi. 10.1002/pbc.24776
By:
- Panepinto, Julie A.;
- Torres, Sylvia;
- Bendo, Cristiane B.;
- McCavit, Timothy L.;
- Dinu, Bogdan;
- Sherman‐Bien, Sandra;
- Bemrich‐Stolz, Christy;
- Varni, James W.
Publication type:
Article
A psychometric evaluation of the PedsQL Family Impact Module in parents of children with sickle cell disease.
Published in:
Health & Quality of Life Outcomes, 2009, v. 7, p. 1, doi. 10.1186/1477-7525-7-32
By:
- Panepinto, Julie A.;
- Hoffmann, Raymond G.;
- Pajewski, Nicholas M.
Publication type:
Article
Impact of emergency department care on outcomes of acute pain events in children with sickle cell disease.
Published in:
American Journal of Hematology, 2016, v. 91, n. 12, p. 1175, doi. 10.1002/ajh.24534
By:
- Brandow, Amanda M.;
- Nimmer, Mark;
- Simmons, Timothy;
- Charles Casper, T.;
- Cook, Lawrence J.;
- Chumpitazi, Corrie E.;
- Paul Scott, J.;
- Panepinto, Julie A.;
- Brousseau, David C.
Publication type:
Article
Identifying existing Choosing Wisely recommendations of high relevance and importance to hematology.
Published in:
American Journal of Hematology, 2016, v. 91, n. 8, p. 787, doi. 10.1002/ajh.24412
By:
- Hicks, Lisa K.;
- Rajasekhar, Anita;
- Bering, Harriet;
- Carson, Kenneth R.;
- Kleinerman, Judith;
- Kukreti, Vishal;
- Ma, Alice;
- Mueller, Brigitta U.;
- O'Brien, Sarah H.;
- Panepinto, Julie A.;
- Pasquini, Marcelo C.;
- Sarode, Ravi;
- Wood, William A.
Publication type:
Article
Health-related quality of life in children with sickle cell anemia: Impact of blood transfusion therapy.
Published in:
American Journal of Hematology, 2015, v. 90, n. 2, p. 139, doi. 10.1002/ajh.23877
By:
- Beverung, Lauren M.;
- Strouse, John J.;
- Hulbert, Monica L.;
- Neville, Kathleen;
- Liem, Robert I.;
- Inusa, Baba;
- Fuh, Beng;
- King, Allison;
- Meier, Emily Riehm;
- Casella, James;
- DeBaun, Michael R.;
- Panepinto, Julie A.
Publication type:
Article
Silent cerebral infarction, income, and grade retention among students with sickle cell anemia.
Published in:
American Journal of Hematology, 2014, v. 89, n. 10, p. E188, doi. 10.1002/ajh.23805
By:
- King, Allison A.;
- Rodeghier, Mark J.;
- Panepinto, Julie Ann;
- Strouse, John J.;
- Casella, James F.;
- Quinn, Charles T.;
- Dowling, Michael M.;
- Sarnaik, Sharada A.;
- Thompson, Alexis A.;
- Woods, Gerald M.;
- Minniti, Caterina P.;
- Redding-Lallinger, Rupa C.;
- Kirby-Allen, Melanie;
- Kirkham, Fenella J.;
- McKinstry, Robert;
- Noetzel, Michael J.;
- White, Desiree A.;
- Kwiatkowski, Janet K.;
- Howard, Thomas H.;
- Kalinyak, Karen A.
Publication type:
Article
Ambulatory quality indicators to prevent infection in sickle cell disease.
Published in:
American Journal of Hematology, 2014, v. 89, n. 3, p. 256, doi. 10.1002/ajh.23627
By:
- Beverung, Lauren M.;
- Brousseau, David;
- Hoffmann, Raymond G.;
- Yan, Ke;
- Panepinto, Julie A.
Publication type:
Article
Patients with sickle cell disease have increased sensitivity to cold and heat.
Published in:
American Journal of Hematology, 2013, v. 88, n. 1, p. 37, doi. 10.1002/ajh.23341
By:
- Brandow, Amanda M.;
- Stucky, Cheryl L.;
- Hillery, Cheryl A.;
- Hoffmann, Raymond G.;
- Panepinto, Julie A.
Publication type:
Article
When children with sickle-cell disease become adults: Lack of outpatient care leads to increased use of the emergency department.
Published in:
American Journal of Hematology, 2011, v. 86, n. 10, p. 863, doi. 10.1002/ajh.22106
By:
- Hemker, Bradd G.;
- Brousseau, David C.;
- Yan, Ke;
- Hoffmann, Raymond G.;
- Panepinto, Julie A.
Publication type:
Article
Monitoring toxicity, impact, and adherence of hydroxyurea in children with sickle cell disease.
Published in:
American Journal of Hematology, 2011, v. 86, n. 9, p. 804, doi. 10.1002/ajh.22101
By:
- Brandow, Amanda M.;
- Panepinto, Julie A.
Publication type:
Article
Hydroxyurea in children with sickle cell disease: Practice patterns and barriers to utilization.
Published in:
American Journal of Hematology, 2010, v. 85, n. 8, p. 611, doi. 10.1002/ajh.21749
By:
- Brandow, Amanda M.;
- Jirovec, Danielle L.;
- Panepinto, Julie A.
Publication type:
Article
The number of people with sickle-cell disease in the United States: national and state estimates.
Published in:
American Journal of Hematology, 2010, v. 85, n. 1, p. 77, doi. 10.1002/ajh.21570
By:
- Brousseau, David C.;
- A Panepinto, Julie;
- Nimmer, Mark;
- Hoffmann, Raymond G
Publication type:
Article
Measurement properties of Patient Reported Outcomes Measurement Information System domains for children with type 1 diabetes.
Published in:
Pediatric Diabetes, 2021, v. 22, n. 2, p. 335, doi. 10.1111/pedi.13134
By:
- Singh, Ashima;
- Dasgupta, Mahua;
- Retherford, Dawn;
- Fiallo‐Scharer, Rosanna;
- Simpson, Pippa M.;
- Panepinto, Julie A.
Publication type:
Article
Postdischarge pain, functional limitations and impact on caregivers of children with sickle cell disease treated for painful events.
Published in:
British Journal of Haematology, 2009, v. 144, n. 5, p. 782, doi. 10.1111/j.1365-2141.2008.07512.x
By:
- Brandow, Amanda M.;
- Brousseau, David C.;
- Panepinto, Julie A.
Publication type:
Article
Matched-related donor transplantation for sickle cell disease: report from the Center for International Blood and Transplant Research.
Published in:
British Journal of Haematology, 2007, v. 137, n. 5, p. 479, doi. 10.1111/j.1365-2141.2007.06592.x
By:
- Panepinto, Julie A.;
- Walters, Mark C.;
- Carreras, Jeanette;
- Marsh, Judith;
- Bredeson, Christopher N.;
- Gale, Robert Peter;
- Hale, Gregory A.;
- Horan, John;
- Hows, Jill M.;
- Klein, John P.;
- Pasquini, Ricardo;
- Roberts, Irene;
- Sullivan, Keith;
- Eapen, Mary;
- Ferster, Alina
Publication type:
Article
Health-related quality of life in children with sickle cell disease: child and parent perception.
Published in:
British Journal of Haematology, 2005, v. 130, n. 3, p. 437, doi. 10.1111/j.1365-2141.2005.05622.x
By:
- Panepinto, Julie A.;
- O'Mahar, Kerry M.;
- DeBaun, Michael R.;
- Loberiza, Fausto R.;
- Scott, J. P.
Publication type:
Article
Clinically meaningful measurement of pain in children with sickle cell disease.
Published in:
Pediatric Blood & Cancer, 2013, v. 60, n. 10, p. 1689, doi. 10.1002/pbc.24624
By:
- Myrvik, Matthew P.;
- Brandow, Amanda M.;
- Drendel, Amy L.;
- Yan, Ke;
- Hoffmann, Raymond G.;
- Panepinto, Julie A.
Publication type:
Article

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