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Development of a symptom menu to facilitate Goal Attainment Scaling in adults with Down syndrome-associated Alzheimer's disease: a qualitative study to identify meaningful symptoms.
Published in:
Journal of Patient-Reported Outcomes, 2021, v. 5, n. 1, p. 1, doi. 10.1186/s41687-020-00278-7
By:
- Knox, Kari;
- Stanley, Justin;
- Hendrix, James A.;
- Hillerstrom, Hampus;
- Dunn, Taylor;
- Achenbach, Jillian;
- Chicoine, Brian A.;
- Lai, Florence;
- Lott, Ira;
- Stanojevic, Sanja;
- Howlett, Susan E.;
- Rockwood, Kenneth
Publication type:
Article
Adapting prescribing criteria for amyloid‐targeted antibodies for adults with Down syndrome.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2024, v. 20, n. 5, p. 3649, doi. 10.1002/alz.13778
By:
- Hillerstrom, Hampus;
- Fisher, Richard;
- Janicki, Matthew P.;
- Chicoine, Brian;
- Christian, Bradley T.;
- Esbensen, Anna;
- Esralew, Lucille;
- Fortea, Juan;
- Hartley, Sigan;
- Hassenstab, Jason;
- Keller, Seth M.;
- Krinsky‐McHale, Sharon;
- Lai, Florence;
- Levin, Johannes;
- McCarron, Mary;
- McDade, Eric;
- Rebillat, Anne Sophie;
- Rosas, Herminia Diana;
- Silverman, Wayne;
- Strydom, Andre
Publication type:
Article
The feasibility of Goal Attainment Scaling in adults with Down syndrome: early results from the LIFE‐DSR‐GAS sub‐study.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2022, v. 18, p. 1, doi. 10.1002/alz.068746
By:
- Dunn, Taylor;
- Britton, Angela;
- Chicoine, Brian;
- Costa, Alberto;
- Hendrix, James A;
- Knox, Kari;
- Lai, Florence;
- Mobley, William C;
- Rockwood, Kenneth;
- Rosas, H. Diana;
- Network, The Down Syndrome Clinical Trials
Publication type:
Article
Understanding meaningful symptoms and challenges in people with Down syndrome and dementia: A qualitative study of caregivers' perspectives: Human/Novel outcomes measures.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2020, v. 16, n. 11, p. 1, doi. 10.1002/alz.043046
By:
- Knox, Kari;
- Stanley, Justin;
- Hendrix, James A;
- Hillerstrom, Hampus;
- Achenbach, Jillian;
- Chicoine, Brian;
- Lai, Florence;
- Lott, Ira T;
- Rockwood, Kenneth
Publication type:
Article
P2‐030: THE LIFE‐DSR STUDY.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2019, v. 15, p. P582, doi. 10.1016/j.jalz.2019.06.1252
By:
- Hendrix, James;
- Burke, Anna D.;
- Capone, George;
- Chicoine, Brian;
- Costa, Alberto;
- Esbensen, Anna J.;
- Hart, Sarah J.;
- Head, Elizabeth;
- Kishnani, Priya S.;
- Lai, Florence;
- Lott, Ira T.;
- Ochoa-Lubinoff, Cesar;
- Rosas, H. Diana;
- Rosser, Tracie;
- Santoro, Stephanie L.;
- Schmitt, Frederick A.;
- Sherman, Stephanie;
- Skotko, Brian G.;
- Talboy, Amy L.;
- Woodward, Jason
Publication type:
Article
Cross-Sectional Exploration of Plasma Biomarkers of Alzheimer's Disease in Down Syndrome: Early Data from the Longitudinal Investigation for Enhancing Down Syndrome Research (LIFE-DSR) Study.
Published in:
Journal of Clinical Medicine, 2021, v. 10, n. 9, p. 1907, doi. 10.3390/jcm10091907
By:
- Hendrix, James A.;
- Airey, David C.;
- Britton, Angela;
- Burke, Anna D.;
- Capone, George T.;
- Chavez, Ronelyn;
- Chen, Jacqueline;
- Chicoine, Brian;
- Costa, Alberto C. S.;
- Dage, Jeffrey L.;
- Doran, Eric;
- Esbensen, Anna;
- Evans, Casey L.;
- Faber, Kelley M.;
- Foroud, Tatiana M.;
- Hart, Sarah;
- Haugen, Kelsey;
- Head, Elizabeth;
- Hendrix, Suzanne;
- Hillerstrom, Hampus
Publication type:
Article
COVID-19 Vaccination of Individuals with Down Syndrome—Data from the Trisomy 21 Research Society Survey on Safety, Efficacy, and Factors Associated with the Decision to Be Vaccinated.
Published in:
Vaccines, 2022, v. 10, n. 4, p. N.PAG, doi. 10.3390/vaccines10040530
By:
- Hüls, Anke;
- Feany, Patrick T.;
- Zisman, Sophia Isabella;
- Costa, Alberto C. S.;
- Dierssen, Mara;
- Balogh, Robert;
- Bargagna, Stefania;
- Baumer, Nicole T.;
- Brandão, Ana Claudia;
- Carfi, Angelo;
- Chicoine, Brian Allen;
- Ghosh, Sujay;
- Lakhanpaul, Monica;
- Levin, Johannes;
- Lunsky, Yona;
- Manso, Coral;
- Okun, Eitan;
- Real de Asua, Diego;
- Rebillat, Anne-Sophie;
- Rohrer, Tilman R.
Publication type:
Article
Retrospective review of the code status of individuals with Down syndrome during the COVID‐19 era.
Published in:
American Journal of Medical Genetics. Part C: Seminars in Medical Genetics, 2024, v. 196, n. 1, p. 1, doi. 10.1002/ajmg.c.32080
By:
- Jett, Jennifer;
- Fossi, Alexander;
- Blonsky, Heather;
- Ross, Wendy;
- Townsend, Sabra;
- Stephens, Mary M.;
- Chicoine, Brian;
- Santoro, Stephanie L.
Publication type:
Article
Pneumonia and respiratory infections in Down syndrome: A scoping review of the literature.
Published in:
American Journal of Medical Genetics. Part A, 2021, v. 185, n. 1, p. 286, doi. 10.1002/ajmg.a.61924
By:
- Santoro, Stephanie L.;
- Chicoine, Brian;
- Jasien, Joan M.;
- Kim, Judy Lu;
- Stephens, Mary;
- Bulova, Peter;
- Capone, George
Publication type:
Article
Co‐occurring medical conditions in adults with Down syndrome: A systematic review toward the development of health care guidelines. Part II.
Published in:
American Journal of Medical Genetics. Part A, 2020, v. 182, n. 7, p. 1832, doi. 10.1002/ajmg.a.61604
By:
- Capone, George;
- Stephens, Mary;
- Santoro, Stephanie;
- Chicoine, Brian;
- Bulova, Peter;
- Peterson, Moya;
- Jasien, Joan;
- Smith, Anna Jo
Publication type:
Article
Co-occurring medical conditions in adults with Down syndrome: A systematic review toward the development of health care guidelines.
Published in:
American Journal of Medical Genetics. Part A, 2018, v. 176, n. 1, p. 116, doi. 10.1002/ajmg.a.38512
By:
- Capone, George T.;
- Chicoine, Brian;
- Bulova, Peter;
- Stephens, Mary;
- Hart, Sarah;
- Crissman, Blythe;
- Videlefsky, Andrea;
- Myers, Katherine;
- Roizen, Nancy;
- Esbensen, Anna;
- Peterson, Moya;
- Santoro, Stephanie;
- Woodward, Jason;
- Martin, Barry;
- Smith, David;
- for the Down Syndrome Medical Interest Group DSMIG‐USA Adult Health Care Workgroup
Publication type:
Article
Considering Dignity of Risk in the Care of People with Intellectual Disabilities: A Clinical Perspective.
Published in:
Perspectives in Biology & Medicine, 2022, v. 65, n. 2, p. 189, doi. 10.1353/pbm.2022.0014
By:
- Chicoine, Brian;
- Kirschner, Kristi L.
Publication type:
Article
COVID-19 in Children with Down Syndrome: Data from the Trisomy 21 Research Society Survey.
Published in:
Journal of Clinical Medicine, 2021, v. 10, n. 21, p. 5125, doi. 10.3390/jcm10215125
By:
- Emes, David;
- Hüls, Anke;
- Baumer, Nicole;
- Dierssen, Mara;
- Puri, Shiela;
- Russell, Lauren;
- Sherman, Stephanie L.;
- Strydom, Andre;
- Bargagna, Stefania;
- Brandão, Ana Cláudia;
- Costa, Alberto C. S.;
- Feany, Patrick T.;
- Chicoine, Brian Allen;
- Ghosh, Sujay;
- Rebillat, Anne-Sophie;
- Sgandurra, Giuseppina;
- Valentini, Diletta;
- Rohrer, Tilman R.;
- Levin, Johannes;
- Lakhanpaul, Monica
Publication type:
Article
Medical Care of Adults With Down Syndrome: A Clinical Guideline.
Published in:
2020
By:
- Tsou, Amy Y.;
- Bulova, Peter;
- Capone, George;
- Chicoine, Brian;
- Gelaro, Bryn;
- Harville, Terry Odell;
- Martin, Barry A.;
- McGuire, Dennis E.;
- McKelvey, Kent D.;
- Peterson, Moya;
- Tyler, Carl;
- Wells, Michael;
- Whitten, Michelle Sie;
- Global Down Syndrome Foundation Medical Care Guidelines for Adults with Down Syndrome Workgroup
Publication type:
journal article
Benefits and Harms of Mammography Screening for Women With Down Syndrome: a Collaborative Modeling Study.
Published in:
2019
By:
- Alagoz, Oguzhan;
- Hajjar, Ali;
- Chootipongchaivat, Sarocha;
- van Ravesteyn, Nicolien T.;
- Yeh, Jennifer M.;
- Ergun, Mehmet Ali;
- de Koning, Harry J.;
- Chicoine, Brian;
- Martin, Barry
Publication type:
journal article
Differences in clinical presentation, severity, and treatment of COVID-19 among individuals with Down syndrome from India and high-income countries: Data from the Trisomy 21 Research Society survey.
Published in:
Journal of Global Health, 2022, v. 12, p. 1, doi. 10.7189/jogh.12.05035
By:
- Pinku, Halder;
- Hüls, Anke;
- Feany, Patrick T.;
- Baumer, Nicole;
- Dierssen, Mara;
- Bargagna, Stefania;
- Costa, Alberto C. S.;
- Chicoine, Brian A.;
- Rebillat, Anne-Sophie;
- Sgandurra, Giuseppina;
- Valentini, Diletta;
- Rohrer, R. Tilman;
- Levin, Johannes;
- Lakhanpaul, Monica;
- Carfì, Angelo;
- Sherman, Stephanie L.;
- Strydom, Andre;
- Ghosh, Sujay
Publication type:
Article
Use of the Community-Oriented Primary Care Model for a Special-Needs Population: A Clinic for Adults With Down Syndrome.
Published in:
American Journal of Public Health, 1995, v. 85, n. 6, p. 869
By:
- Chicoine, Brian;
- McGuire, Dennis;
- Hebein, Sheila;
- Gilly, Donna
Publication type:
Article
Breast Cancer Screening for Women With Down Syndrome: Lessons Learned.
Published in:
Intellectual & Developmental Disabilities, 2015, v. 53, n. 2, p. 91, doi. 10.1352/1934-9556-53.2.91
By:
- Chicoine, Brian;
- Roth, Melody;
- Chicoine, Laura;
- Sulo, Suela
Publication type:
Article
Health issues for adults with Down syndrome.
Published in:
International Journal on Disability & Human Development (De Gruyter), 2006, v. 5, n. 4, p. 347, doi. 10.1515/ijdhd.2006.5.4.347
By:
- Chicoine, Brian;
- McGuire, Dennis;
- Merrick, Joav
Publication type:
Article

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