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Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis.
Published in:
Journal of Patient-Reported Outcomes, 2018, v. 2, n. 1, p. N.PAG, doi. 10.1186/s41687-017-0025-2
By:
- Weitzman, Elissa R.;
- Wisk, Lauren E.;
- Salimian, Parissa K.;
- Magane, Kara M.;
- Dedeoglu, Fatma;
- Hersh, Aimee O.;
- Kimura, Yukiko;
- Mandl, Kenneth D.;
- Ringold, Sarah;
- Natter, Marc
Publication type:
Article
Correction: Engaging patients and parents to improve mental health intervention for youth with rheumatological disease.
Published in:
Pediatric Rheumatology, 2024, v. 22, n. 1, p. 1, doi. 10.1186/s12969-024-00958-4
By:
- Fawole, Oluwatunmise A.;
- Reed, Michelle V.;
- Harris, Julia G.;
- Hersh, Aimee;
- Rodriguez, Martha;
- Onel, Karen;
- Lawson, Erica;
- Rubinstein, Tamar;
- Ardalan, Kaveh;
- Morgan, Esi;
- Paul, Anne;
- Barlin, Judy;
- Daly, R. Paola;
- Dave, Mitali;
- Malloy, Shannon;
- Hume, Shari;
- Schrandt, Suzanne;
- Marrow, Laura;
- Chapson, Angela;
- Napoli, Donna
Publication type:
Article
Diagnosis and Management of Suspected Pediatric Autoimmune Encephalitis: A Comprehensive, Multidisciplinary Approach and Review of Literature.
Published in:
Journal of Child Neurology, 2022, v. 37, n. 4, p. 303, doi. 10.1177/08830738211064673
By:
- Wright, Melissa A.;
- Trandafir, Cristina C.;
- Nelson, Gary R.;
- Hersh, Aimee O.;
- Inman, C. J.;
- Zielinski, Brandon A.
Publication type:
Article
Research priorities in childhood-onset lupus: results of a multidisciplinary prioritization exercise.
Published in:
Pediatric Rheumatology, 2019, v. 17, n. 1, p. N.PAG, doi. 10.1186/s12969-019-0327-4
By:
- Ardoin, Stacy P.;
- Daly, R Paola;
- Merzoug, Lyna;
- Tse, Karin;
- Ardalan, Kaveh;
- Arkin, Lisa;
- Knight, Andrea;
- Rubinstein, Tamar;
- Ruth, Natasha;
- Wenderfer, Scott E.;
- Hersh, Aimee O.
Publication type:
Article
Final adult height of patients with childhood-onset systemic lupus erythematosus: a cross sectional analysis.
Published in:
Pediatric Rheumatology, 2018, v. 16, n. 1, p. N.PAG, doi. 10.1186/s12969-018-0239-8
By:
- Heshin-Bekenstein, Merav;
- Perl, Liat;
- Hersh, Aimee O.;
- von Scheven, Emily;
- Yelin, Ed;
- Trupin, Laura;
- Yazdany, Jinoos;
- Lawson, Erica F.
Publication type:
Article
Rasmussen encephalitis with dual pathology in a patient without seizures: case report and literature review.
Published in:
Child's Nervous System, 2015, v. 31, n. 11, p. 2165, doi. 10.1007/s00381-015-2757-8
By:
- Ravindra, Vijay;
- Mazur, Marcus;
- Mohila, Carrie;
- Sweney, Matthew;
- Hersh, Aimee;
- Bollo, Robert
Publication type:
Article
Disease Course, Treatments, and Outcomes of Children With Systemic Juvenile Idiopathic Arthritis–Associated Lung Disease.
Published in:
Arthritis Care & Research, 2024, v. 76, n. 3, p. 328, doi. 10.1002/acr.25234
By:
- Huang, Yannan;
- Sompii‐Montgomery, Laura;
- Patti, Jessica;
- Pickering, Alex;
- Yasin, Shima;
- Do, Thuy;
- Baker, Elizabeth;
- Gao, Denny;
- Abdul‐Aziz, Rabheh;
- Behrens, Edward M.;
- Canna, Scott;
- Clark, Matthew;
- Co, Dominic O.;
- Collins, Kathleen P.;
- Eberhard, Barbara;
- Friedman, Monica;
- Graham, Thomas B.;
- Hahn, Timothy;
- Hersh, Aimee O.;
- Hobday, Patricia
Publication type:
Article
Childhood‐Onset Lupus Nephritis in the Childhood Arthritis and Rheumatology Research Alliance Registry: Short‐Term Kidney Status and Variation in Care.
Published in:
Arthritis Care & Research, 2023, v. 75, n. 7, p. 1553, doi. 10.1002/acr.25002
By:
- Smitherman, Emily A.;
- Chahine, Rouba A.;
- Beukelman, Timothy;
- Lewandowski, Laura B.;
- Rahman, A. K. M. Fazlur;
- Wenderfer, Scott E.;
- Curtis, Jeffrey R.;
- Hersh, Aimee O.;
- Abel, N.;
- Abulaban, K.;
- Adams, A.;
- Adams, M.;
- Agbayani, R.;
- Aiello, J.;
- Akoghlanian, S.;
- Alejandro, C.;
- Allenspach, E.;
- Alperin, R.;
- Alpizar, M.;
- Amarilyo, G.
Publication type:
Article
Development of a Set of Lupus‐Specific, Ambulatory Care–Sensitive, Potentially Preventable Adverse Conditions: A Delphi Consensus Study.
Published in:
Arthritis Care & Research, 2021, v. 73, n. 1, p. 146, doi. 10.1002/acr.24095
By:
- Feldman, Candace H.;
- Speyer, Cameron;
- Ashby, Rachel;
- L. Bermas, Bonnie;
- Bhattacharyya, Shamik;
- Chakravarty, Eliza;
- Everett, Brendan;
- Ferucci, Elizabeth;
- Hersh, Aimee O.;
- Marty, Francisco M.;
- Merola, Joseph F.;
- Ramsey‐Goldman, Rosalind;
- Rovin, Brad H.;
- Son, Mary Beth;
- Tarter, Laura;
- Waikar, Sushrut;
- Yazdany, Jinoos;
- Weissman, Joel S.;
- Costenbader, Karen H.
Publication type:
Article
Health-Related Quality of Life Measures in Childhood-Onset Systemic Lupus Erythematosus.
Published in:
2020
By:
- Treemarcki, Erin B.;
- Hersh, Aimee O.
Publication type:
journal article
Gaps in Mental Health Care for Youth With Rheumatologic Conditions: A Mixed Methods Study of Perspectives From Behavioral Health Providers.
Published in:
2019
By:
- Knight, Andrea;
- Vickery, Michelle;
- Faust, Lauren;
- Muscal, Eyal;
- Davis, Alaina;
- Harris, Julia;
- Hersh, Aimee O.;
- Rodriguez, Martha;
- Onel, Karen;
- Rubinstein, Tamar;
- Washington, Nina;
- Weitzman, Elissa R.;
- Conlon, Hana;
- Woo, Jennifer M. P.;
- Gerstbacher, Dana;
- Scheven, Emily;
- von Scheven, Emily;
- Childhood Arthritis and Rheumatology Research Alliance Investigators
Publication type:
journal article
Educational and vocational outcomes of adults with childhood- and adult-onset systemic lupus erythematosus: nine years of followup.
Published in:
2014
By:
- Lawson, Erica F;
- Hersh, Aimee O;
- Trupin, Laura;
- von Scheven, Emily;
- Okumura, Megumi J;
- Yazdany, Jinoos;
- Yelin, Edward H
Publication type:
journal article
Educational and Vocational Outcomes of Adults With Childhood- and Adult-Onset Systemic Lupus Erythematosus: Nine Years of Followup.
Published in:
Arthritis Care & Research, 2014, v. 66, n. 5, p. 717, doi. 10.1002/acr.22228
By:
- Lawson, Erica F.;
- Hersh, Aimee O.;
- Trupin, Laura;
- Scheven, Emily;
- Okumura, Megumi J.;
- Yazdany, Jinoos;
- Yelin, Edward H.
Publication type:
Article
Patient outcomes in rheumatology, 2011: a review of measures. Measures of health-related quality of life in pediatric systemic lupus erythematosus.
Published in:
2011
By:
- Hersh, Aimee;
- Katz, Patricia P.
Publication type:
Journal Article
Measures of health-related quality of life in pediatric systemic lupus erythematosus: Childhood Health Assessment Questionnaire (C-HAQ), Child Health Questionnaire (CHQ), Pediatric Quality of Life Inventory Generic Core Module (PedsQL-GC), Pediatric Quality of Life Inventory Rheumatology Module (PedsQL-RM), and Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY)
Published in:
Arthritis Care & Research, 2011, v. 63, p. S446, doi. 10.1002/acr.20559
By:
- Hersh, Aimee
Publication type:
Article
Use of EuroLupus Cyclophosphamide Dosing for the Treatment of Lupus Nephritis in Childhood-onset Systemic Lupus Erythematosus in North America.
Published in:
2022
By:
- Cannon, Laura A.;
- Wenderfer, Scott E.;
- Lewandowski, Laura B.;
- Cooper, Jennifer C.;
- Goilav, Beatrice;
- Knight, Andrea M.;
- Hersh, Aimee O.;
- Ardoin, Stacy P.;
- Sadun, Rebecca E.;
- CARRA Lupus Nephritis Workgroup
Publication type:
journal article
Differences in Healthcare Transition Views, Practices, and Barriers Among North American Pediatric Rheumatology Clinicians From 2010 to 2018.
Published in:
2021
By:
- Johnson, Kiana R.;
- Edens, Cuoghi;
- Sadun, Rebecca E.;
- Chira, Peter;
- Hersh, Aimee O.;
- Goh, Y. Ingrid;
- Hui-Yuen, Joyce;
- Singer, Nora G.;
- Spiegel, Lynn R.;
- Stinson, Jennifer N.;
- White, Patience H.;
- Lawson, Erica;
- CARRA Transition Workgroup
Publication type:
journal article
320. Pediatric open-label clinical study of rituximab for the treatment of granulomatosis with polyangiitis and microscopic polyangiitis.
Published in:
2019
By:
- Brogan, Paul;
- Cleary, Gavin;
- Hersh, Aimee;
- Kasapcopur, Ozgur;
- Rangaraj, Satyapal;
- Yeung, Rae;
- Zeft, Andrew;
- Kirchner, Petra;
- Brunetta, Paul;
- Cooper, Jennifer;
- Pordeli, Pooneh;
- Lehane, Patricia
Publication type:
Abstract
Prevalence of tissue transglutaminase antibodies and IgA deficiency are not increased in juvenile idiopathic arthritis: a case-control study.
Published in:
Pediatric Rheumatology, 2023, v. 21, n. 1, p. 1, doi. 10.1186/s12969-023-00890-z
By:
- Kohli, Angela Taneja;
- Hersh, Aimee O.;
- Ponder, Lori;
- Chan, Lai Hin Kimi;
- Rouster-Stevens, Kelly A.;
- Tebo, Anne E.;
- Kugathasan, Subra;
- Guthery, Stephen L.;
- Bohnsack, John F.;
- Prahalad, Sampath
Publication type:
Article
A novel transition clinic structure for adolescent and young adult patients with childhood onset rheumatic disease improves transition outcomes.
Published in:
Pediatric Rheumatology, 2021, v. 19, n. 1, p. 1, doi. 10.1186/s12969-021-00651-w
By:
- Overbury, Rebecca S.;
- Huynh, Kelly;
- Bohnsack, John;
- Frech, Tracy;
- Hersh, Aimee
Publication type:
Article
Engaging patients and parents to improve mental health intervention for youth with rheumatological disease.
Published in:
Pediatric Rheumatology, 2021, v. 19, n. 1, p. 1, doi. 10.1186/s12969-021-00503-7
By:
- Fawole, Oluwatunmise A.;
- Reed, Michelle V.;
- Harris, Julia G.;
- Hersh, Aimee;
- Rodriguez, Martha;
- Onel, Karen;
- Lawson, Erica;
- Rubinstein, Tamar;
- Ardalan, Kaveh;
- Morgan, Esi;
- Paul, Anne;
- Barlin, Judy;
- Daly, R. Paola;
- Dave, Mitali;
- Malloy, Shannon;
- Hume, Shari;
- Schrandt, Suzanne;
- Marrow, Laura;
- Chapson, Angela;
- Napoli, Donna
Publication type:
Article
Early Outcomes in Children With Antineutrophil Cytoplasmic Antibody-Associated Vasculitis.
Published in:
Arthritis & Rheumatology, 2017, v. 69, n. 7, p. 1470, doi. 10.1002/art.40112
By:
- Morishita, Kimberly A.;
- Moorthy, Lakshmi N.;
- Lubieniecka, Joanna M.;
- Twilt, Marinka;
- Yeung, Rae S. M.;
- Toth, Mary B.;
- Shenoi, Susan;
- Ristic, Goran;
- Nielsen, Susan M.;
- Luqmani, Raashid A.;
- Li, Suzanne C.;
- Lee, Tzielan;
- Lawson, Erica F.;
- Kostik, Mikhail M.;
- Klein‐Gitelman, Marisa;
- Huber, Adam M.;
- Hersh, Aimee O.;
- Foell, Dirk;
- Elder, Melissa E.;
- Eberhard, Barbara A.
Publication type:
Article
Comparing Presenting Clinical Features in 48 Children With Microscopic Polyangiitis to 183 Children Who Have Granulomatosis With Polyangiitis (Wegener's): An ARChiVe Cohort Study.
Published in:
Arthritis & Rheumatology, 2016, v. 68, n. 10, p. 2514, doi. 10.1002/art.39729
By:
- Cabral, David A.;
- Canter, Debra L.;
- Muscal, Eyal;
- Nanda, Kabita;
- Wahezi, Dawn M.;
- Spalding, Steven J.;
- Twilt, Marinka;
- Benseler, Susanne M.;
- Campillo, Sarah;
- Charuvanij, Sirirat;
- Dancey, Paul;
- Eberhard, Barbara A.;
- Elder, Melissa E.;
- Hersh, Aimee;
- Higgins, Gloria C.;
- Huber, Adam M.;
- Khubchandani, Raju;
- Kim, Susan;
- Klein‐Gitelman, Marisa;
- Kostik, Mikhail M.
Publication type:
Article
A85: Effect of Childhood-Onset Systemic Lupus Erythematosus on Linear Height and Body Mass Index.
Published in:
Arthritis & Rheumatology, 2014, v. 66, p. S118, doi. 10.1002/art.38501
By:
- Hersh, Aimee O.;
- Son, Mary Beth;
- von Scheven, Emily
Publication type:
Article
A123: HLA Associations in a Matched Cohort of Juvenile Idiopathic Arthritis Children With and Without Uveitis.
Published in:
Arthritis & Rheumatology, 2014, v. 66, p. S160, doi. 10.1002/art.38544
By:
- Angeles-Han, Sheila T.;
- McCracken, Courtney;
- Pichavant, Mina;
- Jenkins, Kirsten;
- Ponder, Lori;
- Myoung, Erica;
- Stevens, Kelly Rouster;
- Vogler, Larry B.;
- Kennedy, Christine;
- Yeh, Steven;
- Cope, Spencer;
- Bohnsack, John F.;
- Hersh, Aimee O.;
- Thompson, Susan D.;
- Prahalad, Sampath
Publication type:
Article
A168: Systemic Lupus Erythematosus In-Hospital Mortality Risk Across Ages: A National Estimate.
Published in:
Arthritis & Rheumatology, 2014, v. 66, p. S217, doi. 10.1002/art.38594
By:
- Lawson, Erica F.;
- Trupin, Laura;
- Hersh, Aimee O.;
- Scheven, Emily von;
- Yelin, Edward H.;
- Yazdany, Jinoos
Publication type:
Article
Symptoms of periodontitis and antibody responses to Porphyromonas gingivalis in juvenile idiopathic arthritis.
Published in:
Pediatric Rheumatology, 2016, v. 14, p. 1, doi. 10.1186/s12969-016-0068-6
By:
- Lange, Lauren;
- Thiele, Geoffrey M.;
- McCracken, Courtney;
- Wang, Gabriel;
- Ponder, Lori A.;
- Angeles-Han, Sheila T.;
- Rouster-Stevens, Kelly A.;
- Hersh, Aimee O.;
- Vogler, Larry B.;
- Bohnsack, John F.;
- Abramowicz, Shelly;
- Mikuls, Ted R.;
- Prahalad, Sampath
Publication type:
Article
Discontinuing adalimumab in patients with controlled juvenile idiopathic arthritis-associated uveitis (ADJUST-Adalimumab in Juvenile Idiopathic Arthritis-associated Uveitis Stopping Trial): study protocol for a randomised controlled trial.
Published in:
2020
By:
- Acharya, Nisha R.;
- Ebert, Caleb D.;
- Kelly, Nicole K.;
- Porco, Travis C.;
- Ramanan, Athimalaipet V.;
- Arnold, Benjamin F.;
- the ADJUST Research Group;
- Doan, Thuy;
- Gonzales, John A.;
- von Scheven, Emily;
- Angeles-Han, Shelia T.;
- Miraldi Utz, Virginia;
- Vitale, Albert T.;
- Hersh, Aimee O.;
- Overbury, Rebecca S.;
- Stahl, Erin D.;
- Cooper, Ashley M.;
- Lerman, Melissa A.;
- Davidson, Stefanie L.;
- Thorne, Jennifer E.
Publication type:
journal article
Evaluation of Serious Infection in Pediatric Patients with Low Immunoglobulin Levels Receiving Rituximab for Granulomatosis with Polyangiitis or Microscopic Polyangiitis.
Published in:
Rheumatology & Therapy, 2022, v. 9, n. 2, p. 721, doi. 10.1007/s40744-022-00433-0
By:
- Melega, Simone;
- Brogan, Paul;
- Cleary, Gavin;
- Hersh, Aimee O.;
- Kasapcopur, Ozgur;
- Rangaraj, Satyapal;
- Yeung, Rae S. M.;
- Zeft, Andrew;
- Cooper, Jennifer;
- Pordeli, Pooneh;
- Kirchner, Petra;
- Lehane, Patricia B.
Publication type:
Article
Phase IIa Global Study Evaluating Rituximab for the Treatment of Pediatric Patients With Granulomatosis With Polyangiitis or Microscopic Polyangiitis.
Published in:
Arthritis & Rheumatology, 2022, v. 74, n. 1, p. 124, doi. 10.1002/art.41901
By:
- Brogan, Paul;
- Yeung, Rae S. M.;
- Cleary, Gavin;
- Rangaraj, Satyapal;
- Kasapcopur, Ozgur;
- Hersh, Aimee O.;
- Li, Suzanne;
- Paripovic, Dusan;
- Schikler, Kenneth;
- Zeft, Andrew;
- Bracaglia, Claudia;
- Eleftheriou, Despina;
- Pordeli, Pooneh;
- Melega, Simone;
- Jamois, Candice;
- Gaudreault, Jacques;
- Michalska, Margaret;
- Brunetta, Paul;
- Cooper, Jennifer C.;
- Lehane, Patricia B.
Publication type:
Article
Principles of pediatric lupus nephritis in a prospective contemporary multi-center cohort.
Published in:
Lupus, 2021, v. 30, n. 10, p. 1660, doi. 10.1177/09612033211028658
By:
- Vazzana, Kathleen M;
- Daga, Ankana;
- Goilav, Beatrice;
- Ogbu, Ekemini A;
- Okamura, Daryl M;
- Park, Catherine;
- Sadun, Rebecca E;
- Smitherman, Emily A;
- Stotter, Brian R;
- Dasgupta, Abhijit;
- Knight, Andrea M;
- Hersh, Aimee O;
- Wenderfer, Scott E;
- Lewandowski, Laura B
Publication type:
Article

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