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- Title
Developments in Genetic and Epigenetic Data Protection in Behavioral and Mental Health Spaces.
- Authors
Terry, Nicolas
- Abstract
The legal system has been preparing for an explosion of epigenetic issues in public health, environmental regulation and litigation. So far, this explosion has been muted, and for now epigenetic data protection merely seems to be "enjoying" the same technological and legal challenges experienced by other clinical and research data. However, three areas of development suggest where epigenetic data protection may prove problematic. This article examines these three issues, noting the rapid expansion of research based on EMR-sourced clinical data, the large number of data protection models that can apply to genetic data (including point-of-use prohibitions on discrimination and confidentiality), and the increasing and controversial dangers of deidentified information being reidentified.
- Subjects
UNITED States; EPIGENETICS; DATA protection laws; MENTAL health service laws; ELECTRONIC health records; PUBLIC health laws; ENVIRONMENTAL regulations; ACTIONS &; defenses (Law); TECHNOLOGY &; law; SECURITY systems; LAW; RIGHT of privacy; MEDICAL ethics laws; DATA security laws; MEDICAL ethics; PRIVACY; RESEARCH ethics; DATA security; EPIGENOMICS; GENETIC privacy; ETHICS
- Publication
Behavioral Sciences & the Law, 2015, Vol 33, Issue 5, p653
- ISSN
0735-3936
- Publication type
journal article
- DOI
10.1002/bsl.2203