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- Title
Effectiveness of informational decision aids and a live donor financial assistance program on pursuit of live kidney transplants in African American hemodialysis patients.
- Authors
Boulware, L. Ebony; Ephraim, Patti L.; Ameling, Jessica; Lewis-Boyer, LaPricia; Rabb, Hamid; Greer, Raquel C.; Crews, Deidra C.; Jaar, Bernard G.; Auguste, Priscilla; Purnell, Tanjala S.; Lamprea-Monteleagre, Julio A.; Olufade, Tope; Gimenez, Luis; Cook, Courtney; Campbell, Tiffany; Woodall, Ashley; Ramamurthi, Hema; Davenport, Cleomontina A.; Choudhury, Kingshuk Roy; Weir, Matthew R.
- Abstract
<bold>Background: </bold>African Americans have persistently poor access to living donor kidney transplants (LDKT). We conducted a small randomized trial to provide preliminary evidence of the effect of informational decision support and donor financial assistance interventions on African American hemodialysis patients' pursuit of LDKT.<bold>Methods: </bold>Study participants were randomly assigned to receive (1) Usual Care; (2) the Providing Resources to Enhance African American Patients' Readiness to Make Decisions about Kidney Disease (PREPARED); or (3) PREPARED plus a living kidney donor financial assistance program. Our primary outcome was patients' actions to pursue LDKT (discussions with family, friends, or doctor; initiation or completion of the recipient LDKT medical evaluation; or identification of a donor). We also measured participants' attitudes, concerns, and perceptions of interventions' usefulness.<bold>Results: </bold>Of 329 screened, 92 patients were eligible and randomized to Usual Care (n = 31), PREPARED (n = 30), or PREPARED plus financial assistance (n = 31). Most participants reported interventions helped their decision making about renal replacement treatments (62%). However there were no statistically significant improvements in LDKT actions among groups over 6 months. Further, no participants utilized the living donor financial assistance benefit.<bold>Conclusions: </bold>Findings suggest these interventions may need to be paired with personal support or navigation services to overcome key communication, logistical, and financial barriers to LDKT.<bold>Trial Registration: </bold>ClinicalTrials.gov [ NCT01439516 ] [August 31, 2011].
- Subjects
KIDNEY transplantation; HEMODIALYSIS; RANDOMIZED controlled trials; ORGAN donors; MEDICAL care of African Americans
- Publication
BMC Nephrology, 2018, Vol 19, Issue 1, pN.PAG
- ISSN
1471-2369
- Publication type
journal article
- DOI
10.1186/s12882-018-0901-x