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- Title
Updates on the Care of Cloacal Exstrophy.
- Authors
Ostertag-Hill, Claire A.; Delaplain, Patrick T.; Lee, Ted; Dickie, Belinda H.
- Abstract
Cloacal exstrophy is the most severe congenital anomaly of the exstrophy–epispadias complex and is characterized by gastrointestinal, genitourinary, neurospinal, and musculoskeletal malformations. Individualized surgical reconstruction by a multidisciplinary team is required for these complex patients. Not infrequently, patients need staged surgical procedures throughout childhood and adolescence. Following significant improvements in medical care and surgical reconstructive techniques, nearly all patients with cloacal exstrophy now survive, leading to an increased emphasis on quality of life. Increased attention is given to gender identity and the implications of reconstructive decisions. Long-term sequelae of cloacal exstrophy, including functional continence and sexual dysfunction, are recognized, and many patients require ongoing complex care into adulthood.
- Subjects
FERTILITY; MEDICAL quality control; GENDER identity; DIFFERENTIAL diagnosis; URINARY incontinence; FECAL incontinence; EMBRYOLOGY; TREATMENT effectiveness; PRENATAL diagnosis; DIGESTIVE organ abnormalities; MUSCULOSKELETAL system abnormalities; POSTNATAL care; EVALUATION of medical care; PATIENT care; NEUROLOGICAL disorders; BLADDER; QUALITY of life; GENITOURINARY organ abnormalities; BLADDER exstrophy; PLASTIC surgery; POSTOPERATIVE period; GENETICS; ASSIGNED gender; PSYCHOSOCIAL functioning; SEXUAL health; HEALTH care teams
- Publication
Children, 2024, Vol 11, Issue 5, p544
- ISSN
2227-9067
- Publication type
Article
- DOI
10.3390/children11050544