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- Title
Pain Quality Assessment Scale for Epidermolysis Bullosa.
- Authors
SCHRÄDER, Nicholas H. B.; YUEN, Wing Y.; JONKMAN, Marcel F.
- Abstract
Pain is one of the most debilitating symptoms in epidermolysis bullosa (EB) leading to reduced quality of life. Pain in EB comprises both neuropathic and nonneuropathic qualities. An assessment of pain qualities has not formerly been completed in EB. The Pain Quality Assessment Scale (PQAS) is an adjusted version of the validated Neuropathic Pain Scale and includes 20 pain qualities and descriptors. Patients with EB (n = 43) rated the pain qualities in the PQAS on 20 numerical scales and 1 multiple choice question. Pain was experienced by 39 patients (91%). In general, patients with EB experience intense and unpleasant pain on the surface of the skin; the hands and feet are most commonly affected. The subtypes, recessive dystrophic EB and junctional EB reported pain qualities pathognomonic of neuropathic pain. The PQAS adds value to the current practice of global pain intensity scoring in EB.
- Subjects
PAIN management; EPIDERMOLYSIS bullosa; QUALITY of life; NEUROPATHY; HEALTH surveys; THERAPEUTICS
- Publication
Acta Dermato-Venereologica, 2018, Vol 98, Issue 3, p346
- ISSN
0001-5555
- Publication type
Article
- DOI
10.2340/00015555-2827