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- Title
"Please Don't Forget Us": A Descriptive Qualitative Study of Caregivers of Older Adults With Alzheimer's Disease and Related Dementias During the COVID-19 Pandemic.
- Authors
Richards, Kathy C.; Radhakrishnan, Kavita; Britt, Katherine Carroll; Vanags-Louredo, Andrea; Park, Eunice; Gooneratne, Nalaka S.; Fry, Liam
- Abstract
The current descriptive qualitative study explored the perceived impact of the coronavirus disease 2019 pandemic on sleep disturbances and nighttime agitation; the reported use of antipsychotics and other sedating medications; and the overall well-being of older adults with Alzheimer's disease and related dementias (ADRD) and their caregivers. One investigator conducted in-depth, phone interviews with caregivers of nursing home residents with ADRD (four family caregivers [FCs], three nurse practitioners [NPs]) and seven FCs of older adults with ADRD who lived with them at home. Caregivers described multiple sleep disturbances. Nighttime agitation symptoms were perceived to continue or worsen, and sedating medications and nonpharmacological interventions were required. Adverse impacts on reported well-being were significant, and impacts were grouped into emotional, social, and physical themes. Caregivers said, "Please don't forget us," and requested telehealth support for those at home and technology and human resources for nursing homes to reduce adverse impacts. [Research in Gerontological Nursing, 15(5), 217–228.]
- Subjects
UNITED States; VISITING the sick; SERVICES for caregivers; ALZHEIMER'S disease; TIME; RESEARCH methodology; AGITATION (Psychology); INTERVIEWING; SLEEP disorders; SOCIAL isolation; QUALITATIVE research; PSYCHOLOGY of caregivers; HEALTH; DESCRIPTIVE statistics; COVID-19 pandemic; ANTIPSYCHOTIC agents; PSYCHOSOCIAL factors
- Publication
Research in Gerontological Nursing, 2022, Vol 15, Issue 5, p217
- ISSN
1940-4921
- Publication type
Article
- DOI
10.3928/19404921-20220829-01