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Exploring treatment decision-making at diagnosis for children with advanced cancer in low- and middle-income countries.
Published in:
Supportive Care in Cancer, 2024, v. 32, n. 11, p. 1, doi. 10.1007/s00520-024-08951-z
By:
- Salek, Marta;
- Porter, Amy S.;
- Maradiege, Essy;
- Dolendo, Mae Concepcion J.;
- Figueredo, Diego;
- Geriga, Fadhil;
- Gunasekera, Sanjeeva;
- Kizyma, Roman;
- Nguyen, Hoa Thi Kim;
- Nzamu, Irene;
- Raza, Muhammad Rafie;
- Rustamova, Khilola;
- Sari, Nur Melani;
- Rodriguez-Galindo, Carlos;
- Graetz, Dylan;
- Bhakta, Nickhill;
- Kaye, Erica C.;
- Baker, Justin N.;
- Force, Lisa;
- Friedrich, Paola
Publication type:
Article
Approaches for Discussing Clinical Trials with Pediatric Oncology Patients and Their Families.
Published in:
Current Oncology Reports, 2022, v. 24, n. 6, p. 723, doi. 10.1007/s11912-022-01239-7
By:
- Blazin, Lindsay J.;
- Cuviello, Andrea;
- Spraker-Perlman, Holly;
- Kaye, Erica C.
Publication type:
Article
Narrative Medicine in Hospice and Palliative Care: A Longitudinal Fellowship Curriculum Pilot.
Published in:
American Journal of Hospice & Palliative Medicine, 2024, v. 41, n. 10, p. 1161, doi. 10.1177/10499091231223717
By:
- Paul, Trisha K.;
- Aglio, Taylor;
- Dalgo, Austin;
- Kaye, Erica C.
Publication type:
Article
Parent and oncologist perspectives on prognostic disclosure in advanced childhood cancer: communication pearls and pitfalls.
Published in:
Supportive Care in Cancer, 2024, v. 32, n. 6, p. 1, doi. 10.1007/s00520-024-08539-7
By:
- Zalud, Kristina;
- Collins, Griffin;
- Baker, Justin N.;
- Mack, Jennifer W.;
- Kaye, Erica C.
Publication type:
Article
Narrative medicine interventions for oncology clinicians: a systematic review.
Published in:
Supportive Care in Cancer, 2024, v. 32, n. 4, p. 1, doi. 10.1007/s00520-024-08434-1
By:
- Paul, Trisha K.;
- Reddy, Yashaswi;
- Gnanakumar, Anthara;
- England, Rebecca;
- Superdock, Alexandra;
- Malipeddi, Dhatri;
- Wrigley, Jordan;
- Reardon, Erin;
- Weaver, Meaghann S.;
- Kaye, Erica C.
Publication type:
Article
Medical experts and trusted confidants: parent perceptions of the clinician-parent relationship in childhood cancer.
Published in:
Supportive Care in Cancer, 2023, v. 31, n. 2, p. 1, doi. 10.1007/s00520-023-07575-z
By:
- Robertson Eden, G.;
- Josie, Campbell;
- Carlos, Torres;
- Baker Justin, N.;
- Lisa, Clark;
- Spraker-Perlman Holly, L.;
- Kaye Erica, C.
Publication type:
Article
Development of depression in survivors of childhood and adolescent cancer: a multi-level life course conceptual framework.
Published in:
2017
By:
- Kaye, Erica;
- Brinkman, Tara;
- Baker, Justin;
- Kaye, Erica C;
- Brinkman, Tara M;
- Baker, Justin N
Publication type:
journal article
CritCom: assessment of quality of interdisciplinary communication around deterioration in pediatric oncologic patients.
Published in:
Frontiers in Oncology, 2023, p. 1, doi. 10.3389/fonc.2023.1207578
By:
- Rivera, Jocelyn;
- Malone, Sara;
- Puerto-Torres, Maria;
- Prewitt, Kim;
- Counts, Lara;
- Wiphatphumiprates, Parima;
- Sakaan, Firas;
- Al Zebin, Zebin;
- Arias, Anita V.;
- Bhattacharyya, Parthasarathi;
- Gunasekera, Sanjeeva;
- Johnson, Sherry;
- Kambugu, Joyce;
- Kaye, Erica C.;
- Mandrell, Belinda;
- Mack, Jennifer;
- McArthur, Jennifer;
- Mendez, Alejandra;
- Morrissey, Lisa;
- Sharara-Chami, Rana
Publication type:
Article
Hospice nurses request paediatric-specific educational resources and training programs to improve care for children and families in the community: Qualitative data analysis from a population-level survey.
Published in:
Palliative Medicine, 2020, v. 34, n. 3, p. 403, doi. 10.1177/0269216319866576
By:
- Wolfe, Joanne;
- Bluebond-Langner, Myra;
- Kaye, Erica C;
- Applegarth, Jacob;
- Gattas, Melanie;
- Kiefer, Ashley;
- Reynolds, Jason;
- Zalud, Kristina;
- Baker, Justin N
Publication type:
Article
Characterizing the Language Used to Discuss Death in Family Meetings for Critically Ill Infants.
Published in:
JAMA Network Open, 2022, v. 5, n. 10, p. e2233722, doi. 10.1001/jamanetworkopen.2022.33722
By:
- Barlet, Margaret H.;
- Barks, Mary C.;
- Ubel, Peter A.;
- Davis, J. Kelly;
- Pollak, Kathryn I.;
- Kaye, Erica C.;
- Weinfurt, Kevin P.;
- Lemmon, Monica E.
Publication type:
Article
Physician Perceptions of Palliative Care for Children With Cancer in Latin America.
Published in:
JAMA Network Open, 2022, v. 5, n. 3, p. e221245, doi. 10.1001/jamanetworkopen.2022.1245
By:
- McNeil, Michael J.;
- Ehrlich, Bella S.;
- Wang, Huiqi;
- Vedaraju, Yuvanesh;
- Bustamante, Marisol;
- Dussel, Veronica;
- Friedrich, Paola;
- Garcia Quintero, Ximena;
- Gillipelli, Srinithya R.;
- Gomez Garcia, Wendy;
- Graetz, Dylan E.;
- Kaye, Erica C.;
- Metzger, Monika L.;
- Sabato Danon, Carla Vittoria;
- Devidas, Meenakshi;
- Baker, Justin N.;
- Agulnik, Asya
Publication type:
Article
Community Hospice Nurses' Perspectives on Needs, Preferences, and Challenges Related to Caring for Children With Serious Illness.
Published in:
JAMA Network Open, 2021, v. 4, n. 10, p. e2127457, doi. 10.1001/jamanetworkopen.2021.27457
By:
- Porter, Amy S.;
- Zalud, Kristina;
- Applegarth, Jacob;
- Woods, Cameka;
- Gattas, Melanie;
- Rutt, Emily;
- Williams, Karen;
- Baker, Justin N.;
- Kaye, Erica C.
Publication type:
Article
Ideal vs Actual Timing of Palliative Care Integration for Children With Cancer in Latin America.
Published in:
JAMA Network Open, 2023, v. 6, n. 1, p. e2251496, doi. 10.1001/jamanetworkopen.2022.51496
By:
- McNeil, Michael J.;
- Ehrlich, Bella;
- Wang, Huiqi;
- Bustamante, Marisol;
- Dussel, Veronica;
- Friedrich, Paola;
- Garcia Quintero, Ximena;
- Gillipelli, Srinithya R.;
- Gómez García, Wendy;
- Graetz, Dylan;
- Kaye, Erica C.;
- Metzger, Monika;
- Sabato Danon, Carla Vittoria;
- Devidas, Meenakshi;
- Baker, Justin N.;
- Agulnik, Asya
Publication type:
Article
Factors influencing treatment decision‐making for cancer patients in low‐ and middle‐income countries: A scoping review.
Published in:
Cancer Medicine, 2023, v. 12, n. 17, p. 18133, doi. 10.1002/cam4.6375
By:
- Salek, Marta;
- Silverstein, Allison;
- Tilly, Alyssa;
- Gassant, Pascale Yola;
- Gunasekera, Sanjeeva;
- Hordofa, Diriba Fufa;
- Hesson, Donna;
- Duffy, Caitlyn;
- Malik, Nauman;
- McNeil, Michael;
- Force, Lisa M.;
- Bhakta, Nickhill;
- Rodin, Danielle;
- Kaye, Erica C.
Publication type:
Article
Communication transforms the impact of the COVID‐19 pandemic on children with cancer and their families.
Published in:
Cancer Medicine, 2023, v. 12, n. 11, p. 12813, doi. 10.1002/cam4.5950
By:
- Ferrara, Gia;
- Aguina, Molly;
- Mirochnick, Emily;
- Wiphatphumiprates, Parima;
- Moreira, Daniel C.;
- Sniderman, Elizabeth;
- Villegas, César A.;
- Kaye, Erica C.;
- Ragab, Iman;
- Maliti, Biemba;
- Naidu, Gita;
- Gassant, Pascale Y.;
- Arce, Daniela;
- Arora, Ramandeep Singh;
- Alcasabas, Ana Patricia;
- Raza, Muhammad Rafie;
- Velasco, Pablo;
- Kambugu, Joyce;
- Vinitsky, Anna;
- Rodriguez Galindo, Carlos
Publication type:
Article
Pediatric Early Warning Systems (PEWS) improve provider‐family communication from the provider perspective in pediatric cancer patients experiencing clinical deterioration.
Published in:
Cancer Medicine, 2023, v. 12, n. 3, p. 3634, doi. 10.1002/cam4.5210
By:
- Gillipelli, Srinithya R.;
- Kaye, Erica C.;
- Garza, Marcela;
- Ferrara, Gia;
- Rodriguez, Mario;
- Soberanis Vasquez, Dora Judith;
- Mendez Aceituno, Alejandra;
- Antillón‐Klussmann, Federico;
- Gattuso, Jami S.;
- Mandrell, Belinda N.;
- Baker, Justin N.;
- Rodriguez‐Galindo, Carlos;
- Agulnik, Asya;
- Graetz, Dylan E.
Publication type:
Article
"You are not alone": Connecting through a bereaved parent mentor program for parents whose child died of cancer.
Published in:
Cancer Medicine, 2022, v. 11, n. 17, p. 3332, doi. 10.1002/cam4.4696
By:
- McNeil, Michael J.;
- Kiefer, Ashley;
- Woods, Cameka;
- Barnett, Brittany;
- Berry‐Carter, Kathryn;
- Clark, Lisa;
- Mandrell, Belinda N.;
- Snaman, Jennifer;
- Kaye, Erica C.;
- Baker, Justin N.
Publication type:
Article
Impact of PEWS on Perceived Quality of Care During Deterioration in Children With Cancer Hospitalized in Different Resource-Settings.
Published in:
Frontiers in Oncology, 2021, v. 11, p. 1, doi. 10.3389/fonc.2021.660051
By:
- Garza, Marcela;
- Graetz, Dylan E.;
- Kaye, Erica C.;
- Ferrara, Gia;
- Rodriguez, Mario;
- Soberanis Vásquez, Dora Judith;
- Méndez Aceituno, Alejandra;
- Antillon-Klussmann, Federico;
- Gattuso, Jami S.;
- Mandrell, Belinda N.;
- Baker, Justin N.;
- Rodriguez-Galindo, Carlos;
- Agulnik, Asya
Publication type:
Article
Clinician Emotions Surrounding Pediatric Oncology Patient Deterioration.
Published in:
Frontiers in Oncology, 2021, v. 11, p. N.PAG, doi. 10.3389/fonc.2021.626457
By:
- Graetz, Dylan E.;
- Giannars, Emily;
- Kaye, Erica C.;
- Garza, Marcela;
- Ferrara, Gia;
- Rodriguez, Mario;
- Soberanis Vasquez, Dora Judith;
- Mendez Aceituno, Alejandra;
- Antillon-Klussmann, Federico;
- Gattuso, Jami S.;
- Andes, Karen L.;
- Mandrell, Belinda N.;
- Baker, Justin N.;
- Rodriguez-Galindo, Carlos;
- Agulnik, Asya
Publication type:
Article
Advice to Clinicians on Communication from Adolescents and Young Adults with Cancer and Parents of Children with Cancer.
Published in:
Children, 2023, v. 10, n. 1, p. 7, doi. 10.3390/children10010007
By:
- Srinivas, Meghana;
- Kaye, Erica C.;
- Blazin, Lindsay J.;
- Baker, Justin N.;
- Mack, Jennifer W.;
- DuBois, James M.;
- Sisk, Bryan A.
Publication type:
Article
Leveraging Grief: Involving Bereaved Parents in Pediatric Palliative Oncology Program Planning and Development.
Published in:
Children, 2021, v. 8, n. 6, p. 1, doi. 10.3390/children8060472
By:
- Spraker-Perlman, Holly L.;
- Aglio, Taylor;
- Kaye, Erica C.;
- Levine, Deena;
- Barnett, Brittany;
- Carter, Kathryn Berry;
- McNeil, Michael;
- Clark, Lisa;
- Baker, Justin N.
Publication type:
Article
Prognostic Discussion for Infants with Neurologic Conditions: Qualitative Analysis of Family Conferences.
Published in:
2022
By:
- Lemmon, Monica E.;
- Barks, Mary C.;
- Bernstein, Sarah;
- Davis, J. Kelly;
- Jiao, Megan G.;
- Kaye, Erica C.;
- Glass, Hannah C.;
- Brandon, Debra;
- Ubel, Peter A.
Publication type:
journal article
Finding Faith.
Published in:
2020
By:
- Kaye, Erica C.
Publication type:
journal article
Communication around palliative care principles and advance care planning between oncologists, children with advancing cancer and families.
Published in:
2021
By:
- Kaye, Erica C.;
- Woods, Cameka;
- Kennedy, Kendall;
- Velrajan, Srilakshmi;
- Gattas, Melanie;
- Bilbeisi, Tharwa;
- Huber, Rachel;
- Lemmon, Monica E.;
- Baker, Justin N.;
- Mack, Jennifer W.
Publication type:
journal article
Storytelling to support legacy making for bereaved parents of children with cancer.
Published in:
Pediatric Blood & Cancer, 2024, v. 71, n. 11, p. 1, doi. 10.1002/pbc.31272
By:
- Paul, Trisha K.;
- Daniels, Sarah;
- Love, Amy;
- Hart, Katherine;
- Kaye, Erica C.
Publication type:
Article
Access to legacy‐oriented interventions at end of life for pediatric oncology patients: A decedent cohort review.
Published in:
Pediatric Blood & Cancer, 2024, v. 71, n. 8, p. 1, doi. 10.1002/pbc.31066
By:
- Daniels, Sarah;
- Franqui‐Rios, Nelson D.;
- Mothi, Suraj S.;
- Gaitskill, Elizabeth;
- Cantrell, Kathryn;
- Kaye, Erica C.
Publication type:
Article
you leave a hole.
Published in:
Pediatric Blood & Cancer, 2024, v. 71, n. 5, p. 1, doi. 10.1002/pbc.30917
By:
- Kaye, Erica C.
Publication type:
Article
Understanding treatment recommendations at diagnosis of advanced cancer in pediatric oncology: The need to explore decision‐making challenges globally.
Published in:
Pediatric Blood & Cancer, 2024, v. 71, n. 4, p. 1, doi. 10.1002/pbc.30854
By:
- Force, Lisa M.;
- Hlatywayo, Loyce;
- Salek, Marta;
- Bhakta, Manoo;
- Bonilla, Miguel;
- Kaye, Erica C.;
- Rodriguez‐Galindo, Carlos;
- Baker, Justin N.;
- Bhakta, Nickhill;
- Chitsike, Inam
Publication type:
Article
Equitable communication for pediatric cancer patients and families who speak languages other than English.
Published in:
Pediatric Blood & Cancer, 2024, v. 71, n. 3, p. 1, doi. 10.1002/pbc.30828
By:
- Stall, Melanie;
- Germann, Julie N.;
- Orta, Martin;
- Winick, Naomi;
- Kaye, Erica C.
Publication type:
Article
Interdisciplinary care of pediatric oncology patients: A survey of clinicians in Central America and the Caribbean.
Published in:
Pediatric Blood & Cancer, 2023, v. 70, n. 5, p. 1, doi. 10.1002/pbc.30244
By:
- Graetz, Dylan E.;
- Chen, Yichen;
- Devidas, Meenakshi;
- Antillon‐Klussmann, Federico;
- Fu, Ligia;
- Quintero, Karina;
- Fuentes‐Alabi, Soad L.;
- Gassant, Pascale Y.;
- Kaye, Erica C.;
- Baker, Justin N.;
- Rodriguez Galindo, Carlos;
- Mack, Jennifer W.
Publication type:
Article
Navigating prognostic communication when children with poor‐prognosis cancer experience prolonged disease stability.
Published in:
Pediatric Blood & Cancer, 2023, v. 70, n. 1, p. 1, doi. 10.1002/pbc.29920
By:
- Porter, Amy S.;
- Chow, Emma;
- Woods, Cameka;
- Lemmon, Monica E.;
- Baker, Justin N.;
- Mack, Jennifer W.;
- Kaye, Erica C.
Publication type:
Article
Co‐management of communication and care in adolescent and young adult oncology.
Published in:
Pediatric Blood & Cancer, 2022, v. 69, n. 10, p. 1, doi. 10.1002/pbc.29813
By:
- Sisk, Bryan A.;
- Keenan, Megan;
- Kaye, Erica C.;
- Baker, Justin N.;
- Mack, Jennifer W.;
- DuBois, James M.
Publication type:
Article
Broaching goals-of-care conversations in advancing pediatric cancer.
Published in:
2021
By:
- Kaye, Erica C.;
- Woods, Cameka;
- Velrajan, Srilakshmi;
- Lemmon, Monica E.;
- Baker, Justin N.;
- Mack, Jennifer W.
Publication type:
journal article
The state of the science for communication training in pediatric oncology: A systematic review.
Published in:
2020
By:
- Kaye, Erica C.;
- Cannone, Daniel;
- Snaman, Jennifer M.;
- Baker, Justin N.;
- Spraker‐Perlman, Holly;
- Spraker-Perlman, Holly
Publication type:
journal article
Advancing the field of communication research in pediatric oncology: A systematic review of the literature analyzing medical dialogue.
Published in:
Pediatric Blood & Cancer, 2018, v. 65, n. 12, p. N.PAG, doi. 10.1002/pbc.27378
By:
- Kaye, Erica C.;
- Kiefer, Ashley;
- Zalud, Kristina;
- Gattas, Melanie;
- Snyder, Ian;
- Spraker‐Perlman, Holly;
- Baker, Justin N.
Publication type:
Article
Illness and end-of-life experiences of children with cancer who receive palliative care.
Published in:
2018
By:
- Kaye, Erica C.;
- Gushue, Courtney A.;
- DeMarsh, Samantha;
- Jerkins, Jonathan;
- Sykes, April;
- Lu, Zhaohua;
- Snaman, Jennifer M.;
- Blazin, Lindsay;
- Johnson, Liza‐Marie;
- Levine, Deena R.;
- Morrison, R. Ray;
- Baker, Justin N.;
- Johnson, Liza-Marie
Publication type:
journal article
Going straight to the source: A pilot study of bereaved parent-facilitated communication training for pediatric subspecialty fellows.
Published in:
2017
By:
- Snaman, Jennifer M.;
- Kaye, Erica C.;
- Cunningham, Melody J.;
- Sykes, April;
- Levine, Deena R.;
- Mahoney, Daniel;
- Baker, Justin N.
Publication type:
journal article
Parental Grief Following the Death of a Child from Cancer: The Ongoing Odyssey.
Published in:
2016
By:
- Snaman, Jennifer M.;
- Kaye, Erica C.;
- Torres, Carlos;
- Gibson, Deborah;
- Baker, Justin N.
Publication type:
journal article
Metachronous T-Lymphoblastic Lymphoma and Burkitt Lymphoma in a Child With Constitutional Mismatch Repair Deficiency Syndrome.
Published in:
2016
By:
- Alexander, Thomas B.;
- McGee, Rose B.;
- Kaye, Erica C.;
- McCarville, Mary Beth;
- Choi, John K.;
- Cavender, Cary P.;
- Nichols, Kim E.;
- Sandlund, John T.
Publication type:
journal article
Early Integration of Palliative Care for Children with High-Risk Cancer and Their Families.
Published in:
2016
By:
- Kaye, Erica C.;
- Friebert, Sarah;
- Baker, Justin N.
Publication type:
journal article
Publicly available information about fertility benefits for trainees at medical schools in the US.
Published in:
Journal of Assisted Reproduction & Genetics, 2023, v. 40, n. 6, p. 1313, doi. 10.1007/s10815-023-02849-1
By:
- Rasouli, Melody A.;
- Barrett, Francesca;
- Levy, Morgan S.;
- Kim, Ashley S.;
- Roytman, Maya;
- Cumbo, Nicole;
- Talib, Hina;
- Kaye, Erica C.
Publication type:
Article
Facilitators Associated With Building and Sustaining Therapeutic Alliance in Advanced Pediatric Cancer.
Published in:
JAMA Network Open, 2021, v. 4, n. 8, p. e2120925, doi. 10.1001/jamanetworkopen.2021.20925
By:
- Kaye, Erica C.;
- Rockwell, Sarah;
- Woods, Cameka;
- Lemmon, Monica E.;
- Andes, Karen;
- Baker, Justin N.;
- Mack, Jennifer W.
Publication type:
Article
Longitudinal investigation of prognostic communication: Feasibility and acceptability of studying serial disease reevaluation conversations in children with high-risk cancer.
Published in:
2020
By:
- Kaye, Erica C.;
- Gattas, Melanie;
- Bluebond‐Langner, Myra;
- Baker, Justin N.;
- Bluebond-Langner, Myra
Publication type:
journal article
Are we meeting the informational needs of cancer patients and families? Perception of physician communication in pediatric oncology.
Published in:
2019
By:
- Levine, Deena R.;
- Liederbach, Erik;
- Johnson, Liza‐Marie;
- Kaye, Erica C.;
- Spraker‐Perlman, Holly;
- Mandrell, Belinda;
- Pritchard, Michele;
- Sykes, April;
- Lu, Zhaohua;
- Wendler, Dave;
- Baker, Justin N.;
- Johnson, Liza-Marie;
- Spraker-Perlman, Holly
Publication type:
journal article
Helping parents live with the hole in their heart: The role of health care providers and institutions in the bereaved parents' grief journeys.
Published in:
2016
By:
- Snaman, Jennifer M.;
- Kaye, Erica C.;
- Torres, Carlos;
- Gibson, Deborah V.;
- Baker, Justin N.
Publication type:
journal article
Oncologist approaches to communicating uncertain disease status in pediatric cancer: a qualitative study.
Published in:
2022
By:
- Porter, Amy S.;
- Woods, Cameka;
- Stall, Melanie;
- Velrajan, Srilakshmi;
- Baker, Justin N.;
- Mack, Jennifer W.;
- Kaye, Erica C.
Publication type:
journal article
Predictors of Location of Death for Children with Cancer Enrolled on a Palliative Care Service.
Published in:
Oncologist, 2018, v. 23, n. 12, p. 1525, doi. 10.1634/theoncologist.2017-0650
By:
- Kaye, Erica C.;
- DeMarsh, Samantha;
- Gushue, Courtney A.;
- Jerkins, Jonathan;
- Sykes, April;
- Lu, Zhaohua;
- Snaman, Jennifer M.;
- Blazin, Lindsay J.;
- Johnson, Liza‐Marie;
- Levine, Deena R.;
- Ray Morrison, R.;
- Baker, Justin N.
Publication type:
Article
Silence in Conversations About Advancing Pediatric Cancer.
Published in:
Frontiers in Oncology, 2022, v. 12, p. 1, doi. 10.3389/fonc.2022.894586
By:
- Rockwell, Sarah L.;
- Woods, Cameka L.;
- Lemmon, Monica E.;
- Baker, Justin N.;
- Mack, Jennifer W.;
- Andes, Karen L.;
- Kaye, Erica C.
Publication type:
Article
Longitudinal Impact of a Novel Condolence Expression Curriculum.
Published in:
Journal of Palliative Medicine, 2024, v. 27, n. 1, p. 90, doi. 10.1089/jpm.2023.0304
By:
- Aglio, Taylor;
- Paul, Trisha K.;
- Porter, Amy;
- Bien, Kelly;
- Hashmi, Saman K.;
- Lyman, Joanna;
- Kaye, Erica C.
Publication type:
Article
"Seed Planting" As an Approach for Longitudinal Prognostic Disclosure in Pediatric Cancer: A Case Series.
Published in:
Journal of Palliative Medicine, 2023, v. 26, n. 3, p. 447, doi. 10.1089/jpm.2022.0219
By:
- Aglio, Taylor;
- Woods, Cameka;
- Baker, Justin N.;
- Mack, Jennifer W.;
- Kaye, Erica C.
Publication type:
Article

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