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- Title
BARRIERS TO HOME BASED PROPHYLAXIS THERAPY IN PERSONS WITH HEMOPHILIA (PWH).
- Authors
Dutta, Anupam; Duseja, Yash; Borboruah, Luish; Gohain, Upashna Singh; Deka, Bhaskar Jyoti
- Abstract
Background: Home-based prophylaxis is recommended for optimal management of hemophilia. However, barriers limit its implementation in developing countries like India. This study aimed to identify barriers to home therapy in India. Materials and Methods: A qualitative study was conducted through interviews of 20 participants including persons with hemophilia, caregivers, healthcare workers and volunteers. Participants were randomly selected and interviewed using a semi-structured guide. Data was analysed thematically to identify barriers. Results: Four major categories of barriers emerged - technical expertise in self-infusion, logistical challenges of home care, lack of motivation among patients and caregivers, and inadequate advocacy efforts. Difficulties finding veins, fear of improper injection, issues maintaining cold chain, and reluctance to start therapy due to complexity were reported. Discussion: Barriers identified align with previous studies from other developing nations. Addressing skills-training, logistics, motivation and advocacy through targeted interventions like enhanced education, counselling and community engagement can help optimize home therapy uptake. Conclusion: The study provides guidance on key barriers preventing optimal home prophylaxis in India to inform development of context-specific solutions.
- Subjects
VOLUNTEERS; HEMOPHILIACS; MEDICAL personnel; DEVELOPING countries; CAREGIVERS
- Publication
International Journal of Medicine & Public Health, 2024, Vol 14, Issue 3, p204
- ISSN
2230-8598
- Publication type
Article
- DOI
10.70034/ijmedph.2024.3.36