We found a match
Your institution may have access to this item. Find your institution then sign in to continue.
- Title
Caregivers of People with Cancer: The Need for Immediate Information Concerning the Caregiver Role.
- Authors
Linstrum, Karen Sue
- Abstract
The purpose of this narrative review is to continue to illuminate the disconnect experienced by caregivers with the various tasks involved in being a caregiver of a person with cancer. According to White and McBurney (2013), a narrative review involves a person telling a story first hand. The reader will hear directly from the participant in the narrative. Green et al. (2006) noted that narrative reviews written with a specific opinion can be considered commentaries, and the bias of the writer is apparent. Burns et al. (1993) noted that results from research have indicated that caregiver strain for people caring for individuals with cancer is predictable. The predictable symptoms of caregiver strain include feelings of anxiety, confusion, and isolation. Onega (2018) reported that the stress experienced by the caregiver will most likely hinder the care provided to the person with cancer. Northouse et al. (2010), and Ferrell and Wittenberg (2017) have well documented both the unmet needs of the caregiver and the lack of preparation provided for the caregiver of a person with cancer. Indeed, the literature indicated confusion among medical personnel concerning who is to inform the caregiver of the tasks involved in their role (Deshields et al., 2022). The writer invites discussion concerning applying the principles of Universal Design, developed by Dr. Ronald Mace in 1985, to the information and communication systems in the hospital setting. Easier access to educational material involved with caregiving may improve the caregiver's self-reliance.
- Subjects
WITTENBERG (Saxony-Anhalt, Germany); CAREGIVERS; CANCER patients; BURDEN of care; UNIVERSAL design; CANCER education; MEDICAL personnel; TELECOMMUNICATION systems
- Publication
Journal of Applied Professional Studies, 2024, Vol 5, Issue 11, p2
- ISSN
2694-2577
- Publication type
Article