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- Title
THE FAMILYS EXPERIENCE OF CHILDREN AND ADOLESCENTS WITH GASTROINTESTINAL STOMAS.
- Authors
Ferraz Lazarini Zacarin, Clara; Aparecida Borges, Amanda; Dupas, Giselle
- Abstract
Caring for a child with stoma causes impacts on the family and generates great demand for permanent and specific care. This study aimed to understand the experience of families of children and adolescents who have gastrointestinal stomas. It is a qualitative study, which used the Symbolic Interactionism as a theoretical reference and narrative analysis as a method, in order to complain the experience of the family. The data analysis suggests that families go through a dynamic process before indicating the need of the stoma. The acceptance of the condition that in the son it is progressive and, even in before the difficulties, family members suggest optimism and aim this son reintegration into society, preferably without the device. The results of this study allow one to deepen the knowledge about the family's experience in this context, and this allows to improve the health care, advancing in matters of nursing care. In this context, the study highlights the need of support from a structured network for the family to monitor, mentor and solve doubts of the placement process and care to the stoma.
- Subjects
BRAZIL; FAMILIES &; psychology; PSYCHOLOGICAL adaptation; PSYCHOLOGY of caregivers; FAMILIES; GASTROINTESTINAL system; INTERVIEWING; RESEARCH methodology; PATIENT-family relations; MEDICAL quality control; RESEARCH; QUALITATIVE research; NARRATIVES; OSTOMY; FAMILY attitudes; ADOLESCENCE; CHILDREN
- Publication
Ciencia, Cuidado e Saude, 2018, Vol 17, Issue 2, p1
- ISSN
1677-3861
- Publication type
Article
- DOI
10.4025/cienccuidsaude.v17i2.41278