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- Title
Effectiveness of a family empowerment program on caregiving capacity and adverse mood in caregivers of children with acute leukemia: a quasi-experimental study.
- Authors
Guo, Fang; Li, Liangjian; Jiang, Hao; Yu, Jie; Wang, Yueqi
- Abstract
Background: Family-centered empowerment programs have been widely used in the pediatric field. Therefore, the current study investigated the effectiveness of family empowerment programs on caregiving ability and adverse mood among caregivers of children with acute leukemia. Objective: To evaluate the effect of a family empowerment program on the caregiving ability and adverse mood of caregivers of children with acute leukemia. Methods: Sixty-eight children with acute leukemia and their family caregivers admitted to our hospital were selected for the study. The control group received routine care during hospitalization, and the family empowerment program was implemented in the intervention group to compare the changes in caregiving capacity (FCTI), illness uncertainty (PPUS) and anxiety(SAS)of the caregivers of the two groups. Results: After 8 weeks of intervention, the FCTI score of the intervention group was significantly lower than that of the control group (P < 0.001), and the difference between the scores before and after the intervention was statistically significant (P < 0.001); the PPUS score of the intervention group was significantly lower than that of the control group (P < 0.05), and the difference between the scores before and after the intervention was statistically significant (P < 0.001); the SAS score of the intervention group was lower than that of the control group after intervention(P < 0.05), and the score difference before and after intervention was statistically significant (P < 0.001). Conclusion: Family empowerment program is beneficial in improving caregiving capacity and reducing disease uncertainty and anxiety among caregivers of children with acute leukemia. Trial registration: Chinese Clinical Trial Registry ChiCTR2300073476 2023-07-12 Retrospectively registered.
- Subjects
LYMPHOBLASTIC leukemia treatment; SELF-efficacy; T-test (Statistics); STATISTICAL significance; RESEARCH funding; EVALUATION of human services programs; CLINICAL trials; QUESTIONNAIRES; FISHER exact test; TREATMENT effectiveness; UNCERTAINTY; PSYCHOLOGICAL adaptation; CHI-squared test; MANN Whitney U Test; DESCRIPTIVE statistics; BURDEN of care; FAMILY-centered care; RESEARCH methodology; QUALITY of life; PSYCHOLOGY of caregivers; AFFECT (Psychology); DATA analysis software; CHILDREN
- Publication
BMC Nursing, 2024, Vol 23, Issue 1, p1
- ISSN
1472-6955
- Publication type
Article
- DOI
10.1186/s12912-024-01973-2