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- Title
The Carers' Alert Thermometer (CAT): supporting family carers of people living with motor neurone disease.
- Authors
O'Brien, Mary R; Jack, Barbara A; Kinloch, Karen; Clabburn, Oliver; Knighting, Katherine
- Abstract
Background: Burden and distress among family carers of people living with motor neurone disease (MND) are reported widely. Evidence-based screening tools to help identify these carers' needs and plan appropriate support are urgently needed. Aim: To pilot the Carers' Alert Thermometer (CAT), a triage tool developed to identify carers' needs, with family carers of people living with MND to determine its usefulness in identifying their need for support. Methods: Training workshops with MND Association visitors (AVs) and staff in southwest and northwest England, followed by implementation of the CAT. A self-completed online survey and semi-structured telephone interview evaluated use of the CAT. Findings: Sixteen participants completed the online survey with 11 volunteering to be interviewed. The CAT has potential to map change over time, help to focus on carers' needs and improve communication with carers. Conclusion: The CAT provides a structure enabling AVs to engage in a meaningful process with family carers to identify and discuss their needs.
- Subjects
ENGLAND; FAMILIES; INTERVIEWING; SERVICES for caregivers; RESEARCH methodology; MOTOR neuron diseases; NEEDS assessment; SCALE analysis (Psychology); SURVEYS; TELEPHONES; ADULT education workshops; PILOT projects; USER-centered system design; RESEARCH methodology evaluation; DATA analysis software
- Publication
British Journal of Neuroscience Nursing, 2019, Vol 15, Issue 3, p114
- ISSN
1747-0307
- Publication type
Article
- DOI
10.12968/bjnn.2019.15.3.114