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- Title
Psychometric Evaluation of the German Version of the Perceived Access to Healthcare Questionnaire in a Sample of Individuals with Rare Chronic Diseases.
- Authors
Wehrli, Susanne; Dwyer, Andrew A.; Landolt, Markus A.
- Abstract
Access to healthcare is multifaceted and poses significant challenges for individuals with chronic and rare diseases (RDs). This study aimed to conduct a psychometric evaluation of the German version of the Perception of Access to Healthcare Questionnaire (PAHQ) among individuals with RDs. We conducted an evaluation of the PAHQ using a sample of 271 adults with an RD diagnosis. The 31-item instrument underwent evaluation including a comparison of three different confirmatory factor models (CFA). Subsequent steps involved item removal, reliability analysis (computation of Cronbach's alpha), and analysis of criterion-related validity. The six-factor model showed the best fit to the data and was selected for further examination. Subsequently, six items were removed. Fit indices for the final model were acceptable. Cronbach's alpha ranged from 0.75 to 0.91 for the six subscales, except for the availability subscale which exhibited the lowest value (0.64). In terms of criterion-related validity, different skills relating to the navigation of access dimensions were significantly correlated with corresponding PAHQ subscales, thus confirming validity. The capacity of the PAHQ to guide targeted interventions and facilitate cross-population comparisons positions it as a valuable instrument for advancing healthcare access research and promoting equitable access to care, particularly for individuals with rare and chronic diseases.
- Subjects
TREATMENT of rare diseases; CHRONIC disease treatment; CHRONIC disease diagnosis; HEALTH services accessibility; MULTITRAIT multimethod techniques; HEALTH literacy; PATIENT autonomy; CRONBACH'S alpha; QUESTIONNAIRES; RESEARCH methodology evaluation; RESEARCH evaluation; RARE diseases; TRANSLATIONS; HELP-seeking behavior; DESCRIPTIVE statistics; STRUCTURAL equation modeling; CHI-squared test; EXPERIMENTAL design; PSYCHOMETRICS; RESEARCH methodology; FACTOR analysis; COMPARATIVE studies; DATA analysis software; PHYSICAL mobility; SOCIAL classes
- Publication
Healthcare (2227-9032), 2024, Vol 12, Issue 6, p661
- ISSN
2227-9032
- Publication type
Article
- DOI
10.3390/healthcare12060661