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- Title
Caring and Grieving in the Context of Social and Structural Inequity: Experiences of Australian Carers With Social Welfare Needs.
- Authors
Bindley, Kristin; Lewis, Joanne; Travaglia, Joanne; DiGiacomo, Michelle
- Abstract
Caring for and bereavement following the death of someone with a life-limiting illness may precipitate social welfare needs related to income support and housing. Nevertheless, carer experiences of welfare policy and institutions have not received significant attention. This qualitative study explored experiences of carers who navigated social welfare policy while caring for someone with a life-limiting illness, and in bereavement. In-depth interviews were conducted with 12 bereaved carers in an area associated with socioeconomic disadvantage. Carers differentially encountered precariousness, with some experiencing structural vulnerability. These positionalities appeared to be shaped by policy and process-related burdens, perceptions of the welfare state, and degrees of legitimisation or disenfranchisement of forms of capital and coping orientations. Recommendations that may improve carer experience were identified. Implications relate to the need for an expanded conceptualisation of vulnerability in health and welfare practice, policy that authentically validates caring and grieving, and upstream strategies that address inequity.
- Subjects
AUSTRALIA; GRIEF; CAREGIVER attitudes; HEALTH policy; SOCIAL determinants of health; HEALTH services accessibility; CAREGIVERS; RESEARCH methodology; HEALTH status indicators; INTERVIEWING; HUMANITY; EXPERIENCE; RESEARCH funding; PUBLIC welfare; PSYCHOLOGICAL adaptation; MEDICAL needs assessment; PALLIATIVE treatment
- Publication
Qualitative Health Research, 2022, Vol 32, Issue 1, p64
- ISSN
1049-7323
- Publication type
Article
- DOI
10.1177/10497323211046875