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- Title
Hubris or Helpful? Ethics and governance in heritable genome editing.
- Authors
Tou, Connor
- Abstract
With the birth of gene-edited twins in China, scientific backlash has fueled an urgent need for new governance. Overstepping of ethical boundaries demands a revisiting of regulatory policymaking and a renewed deliberation on clinical genome editing and its applications through a new or modified international framework. Fundamental questions encompassing our ability to control human evolution serve as a backdrop for quandaries regarding multigenerational consent, genetic correction versus enhancement, societal and social implications, religious considerations, moral obligations, and human welfare. As clinical genome editing has immense potential to eradicate disease, it should certainly be an option; however, the questions of which cases it should be allowed in, what legal framework is needed to regulate these cases, and who makes these decisions as part of an international committee must by driven by the public and all stakeholders.
- Subjects
CHINA; GENOME editing; HUMANITARIANISM; SOCIAL impact; HUMAN evolution; DUTY; ETHICS
- Publication
Penn Bioethics Journal, 2020, Vol 15, Issue 2, p17
- ISSN
2150-5462
- Publication type
Article