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- Title
Parents’ Experiences of Health Care for Their Children With Cerebral Palsy.
- Authors
Hayles, Emily; Harvey, Desley; Plummer, David; Jones, Anne
- Abstract
Although current health care service delivery approaches for children with cerebral palsy recognize the importance of including parents in the health care of their child, we do not yet understand how parents experience this phenomenon. In this study, we used grounded theory methodology to explore parents’ experiences of health care for their children with cerebral palsy living in a regional area of Australia. Our findings indicate that parents experience health care for their child as a cyclical process of “making the most of their body and their life.” Important aspects of care include “learning as you go,” “navigating the systems,” “meeting needs through partnership,” “being empowered or disempowered,” and “finding a balance.” We suggest modifications to health care service delivery practices that might contribute to improved experiences of health care for this population.
- Subjects
AUSTRALIA; CHILDREN with cerebral palsy; GROUNDED theory; MEDICAL care; PARENTS; PARENTS of children with disabilities; QUALITATIVE research; PARENT attitudes; ATTITUDES toward disabilities; PSYCHOLOGY
- Publication
Qualitative Health Research, 2015, Vol 25, Issue 8, p1139
- ISSN
1049-7323
- Publication type
Article
- DOI
10.1177/1049732315570122