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- Title
Assessing the Severity of Cervical Dystonia: Ask the Doctor or Ask the Patient?
- Authors
Cotton, Adam C.; Scorr, Laura; McDonald, William; Comella, Cynthia; Perlmutter, Joel S.; Goetz, Christopher G.; Jankovic, Joseph; Marsh, Laura; Factor, Stewart; Jinnah, H.A.
- Abstract
Background: Assessing disease severity can be performed using either clinician‐rated scales (CRS) or patient‐rated outcome (PRO) tools. These two measures frequently demonstrate poor correlations. Objectives: To determine if the correlation between a CRS and PRO for motor features of cervical dystonia (CD) improves by accounting for non‐motor features. Methods: Subjects with CD (N = 209) were evaluated using a CRS (Toronto Western Spasmodic Torticollis Rating Scale, TWSTRS) and a PRO (Cervical Dystonia Impact Profile, CDIP‐58). Results: Linear regression revealed a weak correlation between the two measures, even when considering only the motor subscales of each. The strength of this relationship improved with a regression model that included non‐motor symptoms of pain, depression, and disability. Conclusions: These results argue that the results of motor assessments in a PRO for CD cannot be fully appreciated without simultaneous assessment of non‐motor co‐morbidities. This conclusion might apply to other disorders, especially those with frequent non‐motor co‐morbidities.
- Subjects
DYSTONIA; PHYSICIANS; TORTICOLLIS
- Publication
Movement Disorders Clinical Practice, 2023, Vol 10, Issue 9, p1399
- ISSN
2330-1619
- Publication type
Article
- DOI
10.1002/mdc3.13827