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- Title
Using telepresence robots as a tool to engage patient and family partners in dementia research during COVID-19 pandemic: a qualitative participatory study.
- Authors
Hung, Lillian; Lake, Charlie; Hussein, Ali; Wong, Joey; Mann, Jim
- Abstract
Background: Long-term care (LTC) settings have been disproportionately affected by the COVID-19 pandemic; it is important to address unmet needs and explore practical strategies for supporting LTC residents and staff. The involvement of patient partners and family community members in research planning, implementation and evaluation is the basis of Patient and Public Involvement approach and has been challenging during the COVID-19 pandemic, as visitation restrictions have created barriers to conducting research in healthcare settings. Innovative methods and tools are needed for conducting participatory research. This study investigated the use of telepresence as innovative tools for participatory research based on three projects conducted with patient and family partners during the COVID-19 pandemic. Methods: The data source includes (a) team reflective discussions, (b) weekly meeting notes, (c) field notes, and (d) interviews with ten researchers. We applied purposive sampling to select ten researchers who used a telepresence robot to conduct research in British Columbia, Canada. Semi-structured one-to-one interviews were conducted via Zoom virtual meetings. Patient and family partners contributed to team analysis to identify themes. Results: Analysis of the data produced five themes: (1) Research Enabler, (2) User-Friendly Technology, (3) Increased Engagement, (4) Lack of Infrastructure and Resources, and (5) Training and Technical Obstacles. Based on the results, we propose "ROBOT"—an acronym for five actionable recommendations to support the use of telepresence robots for research. The ROBOT recommendations represent: Realign to adapt, Organize with champions, Blend strategies, Offer timely technical assistance, and Tailor training to individual needs. Conclusions: This study offers practical insights into the use of telepresence robots as a safe and innovative tool for conducting remote research with people with dementia, even in times of restricted access, as with COVID-19. Future research should apply more creativity and flexibility in adopting technology to expand possibilities for involving people with dementia in research. Plain English summary: It is important to address unmet needs and explore practical strategies for supporting long-term care (LTC) residents and staff who have been disproportionately affected by the COVID-19 pandemic. Involving patient partners and family community members in research planning, implementation, and evaluation is crucial for understanding the challenges faced by LTC residents. However, the restrictions on visitation and staff shortages during the pandemic have made this difficult. This study investigated the use of telepresence robots as innovative tools for participatory research. We interviewed ten researchers who used telepresence robots to conduct remote research in British Columbia, Canada. Semi-structured one-to-one interviews were conducted via Zoom meetings and analyzed to find common themes. Based on the analysis of the interviews and our reflection, five themes were found: (1) Research Enabler, (2) User-Friendly Technology, (3) Increased Engagement, (4) Lack of Infrastructure and Resources, and (5) Training and Technical Obstacles. Based on these findings, we propose "ROBOT"—an acronym for actionable recommendations to support the use of telepresence robots for research. These recommendations include: Realign to adapt, Organize with champions, Blend strategies, Offer timely technical assistance, and Tailor training to individual needs. This study provides insights into the use of telepresence robots as safe and innovative tools for conducting research with patient and family partners remotely, even in times of restricted access, such as during the COVID-19 pandemic.
- Subjects
BRITISH Columbia; COVID-19 pandemic; TELEPRESENCE; PATIENTS' families; ROBOTS; LABOR demand; THEMATIC analysis; COMMUNITY gardens
- Publication
Research Involvement & Engagement, 2023, Vol 9, Issue 1, p1
- ISSN
2056-7529
- Publication type
Article
- DOI
10.1186/s40900-023-00421-w