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- Title
Medical "Gatekeeping" for Psychosocial Research on Serious Illness: Bioethical Reflections.
- Authors
McGrath, Pam; Kaur, Amandeep; Feracho, Rennette; Patton, Mary Anne
- Abstract
The discussion explores ethical issues associated with medical "gatekeeping" in relation to psychosocial health research associated with serious illness and loss. "Gatekeeping" is defined as the process whereby health-care providers prevent access to eligible patients for research recruitment. The impact of this practice on the research process is explored, including issues of sample representation, selection bias, and wastage of time and resources. The reflection of ethical issues is set in the context of research on clinical empathic responsiveness and accuracy, paternalism, and the ethical principles of autonomy, beneficence, and justice.
- Subjects
AUTONOMY (Psychology); BENEVOLENCE; BIOETHICS; HEALTH services accessibility; PATERNALISM; PSYCHIATRY; SOCIAL justice; RESEARCH bias; HUMAN research subjects; PATIENT selection; HEMATOLOGIC malignancies
- Publication
Illness, Crisis & Loss, 2020, Vol 28, Issue 3, p218
- ISSN
1054-1373
- Publication type
Article
- DOI
10.1177/1054137317718999