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- Title
Vietnamese American Perspectives on Engagement in an Aging-Focused Research Registry.
- Authors
Meyer, Oanh L.; Nguyen, Krystal; Nam, Bora; Tsoh, Janice Y.; Hinton, Ladson; Gallagher-Thompson, Dolores; Grill, Joshua; Vuong, Quyen; Park, Van Ta
- Abstract
Introduction: We elicited Vietnamese Americans' perspectives on culturally appropriate recruitment into a new research registry: Collaborative Approach for Asian Americans, Native Hawaiians, and Pacific Islanders (AANHPIs) Research and Education (CARE). Methods: Three focus groups were conducted with 21 Vietnamese Americans. Topics included knowledge about and experiences with research, outreach and recruitment methods for research participation and registry enrollment, and views about research incentives. Focus group transcripts were analyzed thematically. Results: Mean age of participants was 41 years (range 18–73), 57% were male, 86% were non-US born, and 81% had never participated in a research study. Themes that emerged included (1) motivations to participate in research to gain knowledge: for oneself, for family's benefit, and for the Vietnamese American community as a whole; (2) necessity of trustworthy and credible individuals/spokespersons to promote the research initiative; (3) recruitment strategies that are age-specific and culturally appropriate, and (4) importance of monetary incentives. Conclusion: Findings from this study will be used to guide recruitment into and engagement with CARE among Vietnamese Americans but are also relevant for other registries aiming to diversify their participants.
- Subjects
HAWAIIANS; PATIENT selection; ASIAN Americans; PACIFIC Islanders; HUMAN research subjects; VIETNAMESE Americans; REPORTING of diseases; DESCRIPTIVE statistics; EXPERIENCE; THEMATIC analysis; AGING; COMPARATIVE studies
- Publication
Dementia & Geriatric Cognitive Disorders, 2024, Vol 53, Issue 2, p83
- ISSN
1420-8008
- Publication type
Article
- DOI
10.1159/000538050