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- Title
Diagnostisch hulpmiddel dementie bij mensen met (zeer) ernstige verstandelijke (en meervoudige) beperkingen: ontwikkeling en eerste praktijktoets.
- Authors
Wissing, M.; Koudenburg, S.; van der Wal, I.; Groen, M.; van Dam, L.; Hobbelen, J.; De Deyn, P.; Waninge, A.; Dekker, A.
- Abstract
Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Currently, no standardized dementia screening instrument exists for people with SPI(M)D. Therefore, development of a suitable instrument to aid diagnosis of dementia in this population is desired. Aim: The aim of this study was 1) to develop an instrument for psychologists and psychological assistants to identify dementia-related changes in people with SPI(M)D and 2) to examine validity, reliability, discriminative ability and practice-based experiences of this instrument. Methods: Scientific literature and practice-based experiences guided the development of the instrument. The instrument was tested in clinical practice by conducting structured interviews with informants of people with SPI(M)D without dementia (n=18), with questionable dementia (n=10) and with diagnosed dementia (n=10). Results: The instrument comprised 45 items, categorized into 7 symptom domains. Results concerning validity and reliability were promising. Regarding discriminative ability, people with diagnosed dementia tended to show most changes and people without dementia least based on item scores, domain scores and total scores. Experiences from psychologists, psychological assistants and informants were predominantly positive. Conclusion: The first results suggest that this instrument can identify dementia-related changes in people with SPI(M)D. It can be implemented in intellectual disability care organizations, whereby it is recommended to further study reliability and discriminative ability.
- Subjects
DIAGNOSIS of dementia; EXPERIMENTAL design; RESEARCH evaluation; RESEARCH methodology; ATTITUDES of medical personnel; MEDICAL screening; EVIDENCE-based medicine; INTERVIEWING; DESCRIPTIVE statistics
- Publication
Nederlands Tijdschrift voor de Zorg aan Mensen met Veerstandelijke Beperkingen, 2023, Vol 49, Issue 3, p94
- ISSN
0923-2370
- Publication type
Article