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- Title
Developing a home-based pulmonary rehabilitation programme for patients with chronic respiratory diseases in Malaysia: A mixed-method feasibility study.
- Authors
Soo Chin Chan; Engksan, Julia Patrick; Nathan, Jayakayatri Jeevajothi; Sekhon, Jaspreet Kaur; Hussein, Norita; Suhaimi, Anwar; Hanafi, Nik Sherina; Yong Kek Pang; Yatim, Saari Mohamad; Habib, G. M. Monsur; Pinnock, Hilary; Ee Ming Khoo
- Abstract
Background The COVID-19 pandemic has underscored the importance of remote healthcare and home-based interventions, including pulmonary rehabilitation, for patients with chronic respiratory diseases (CRDs). It has also heightened the vulnerability of individuals with underlying respiratory conditions to severe illness from COVID-19, necessitating exploration and assessment of the feasibility of delivering home - pulmonary rehabilitation (home-PR) programmes for CRD management in Malaysia and other countries. Home-based programmes offer a safer alternative to in-person rehabilitation during outbreaks like COVID-19 and can serve as a valuable resource for patients who may be hesitant to visit healthcare facilities during such times. We aimed to assess the feasibility of delivering a home-PR programme for patients with CRDs in Malaysia. Methods We recruited patients with CRDs from two hospitals in Klang Valley, Malaysia to a home-PR programme. Following centre-based assessment, patients performed the exercises at home (five sessions/week for eight weeks (total 40 sessions)). We monitored the patients via weekly telephone calls and asked about adherence to the programme. We measured functional exercise capacity (6-Minutes Walking Test (6MWT) and Health-Related Quality-of-Life (HRQoL) (COPD Assessment Test (CAT)) at baseline and post-PR at nine weeks. We conducted semi-structured interviews with 12 purposively sampled participants to explore views and feedback on the home-PR programme. The interviews were audio recorded, transcribed verbatim, and analysed thematically. Results We included 30 participants; two withdrew due to hospitalisation. Although 28 (93%) adhered to the full programme, only 11 (37%) attended the post-PR assessment because COVID-19 movement restrictions in Malaysia at that time prevented attendance at the centre. Four themes emerged from the qualitative analysis: involvement of family and caregivers, barriers to home-PR programme, interactions with peers and health care professionals, and programme enhancement. Conclusion Despite the COVID-19 pandemic, the home-PR programme proved feasible for remote delivery, although centre-based post-PR assessments were not possible. Family involvement played an important role in the home-PR programme. The delivery of this programme can be further improved to maximise the benefit for patients.
- Subjects
MALAYSIA; RESPIRATORY diseases; MEDICAL rehabilitation; HEALTH Belief Model; HOSPITALS; AFFINITY groups; PUBLISHING; EXERCISE tolerance; PATIENT participation; CAREGIVERS; HOME rehabilitation; LUNG diseases; RESEARCH methodology; TELEPHONES; FUNCTIONAL status; INTERVIEWING; FAMILIES; QUALITATIVE research; PATIENTS' attitudes; FAMILY roles; RESEARCH funding; DISEASE susceptibility; QUALITY of life; DESCRIPTIVE statistics; PATIENT compliance; JUDGMENT sampling; THEMATIC analysis; PATIENT-professional relations; STATISTICAL sampling; DATA analysis software; EXERCISE therapy
- Publication
Journal of Global Health, 2023, Vol 13, p1
- ISSN
2047-2978
- Publication type
Article
- DOI
10.7189/jogh.13.04099