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- Title
Perspectives on Precision Health Among Racial/Ethnic Minority Communities and the Physicians That Serve Them.
- Authors
Rosas, Lisa G.; Nasrallah, Catherine; Park, Van Ta; Vasquez, Jan J.; Duron, Ysabel; Garrick, Owen; Hattin, Riccesha; Cho, Mildred; David, Sean P.; Evans, Jill; McClinton-Brown, Rhonda; Martin, Christopher
- Abstract
<bold>Background: </bold>In order for precision health to address health disparities, engagement of diverse racial/ethnic minority communities and the physicians that serve them is critical.<bold>Methods: </bold>A community-based participatory research approach with mixed methods was employed to gain a deeper understanding of precision health research and practice among American Indian, African American, Latino, Chinese, and Vietnamese groups and physicians that serve these communities. A survey assessed demographics and opinions of precision health, genetic testing, and precision health research. Focus groups (n=12) with each racial/ethnic minority group and physicians further explored attitudes about these topics.<bold>Results: </bold>One hundred community members (American Indian [n=17], African American [n=13], Chinese [n=17], Latino [n=27], and Vietnamese [n=26]) and 14 physicians completed the survey and participated in the focus groups. Familiarity with precision health was low among community members and high among physicians. Most groups were enthusiastic about the approach, especially if it considered influences on health in addition to genes (eg, environmental, behavioral, social factors). Significant concerns were expressed by African American and American Indian participants about precision health practice and research based on past abuses in biomedical research. In addition, physician and community members shared concerns such as security and confidentiality of genetic information, cost and affordability of genetic tests and precision medicine, discrimination and disparities, distrust of medical and research and pharmaceutical institutions, language barriers, and physician's specialty.<bold>Conclusions: </bold>Engagement of racial/ethnic minority communities and the providers who serve them is important for advancing a precision health approach to addressing health disparities.
- Subjects
MINORITIES; COMMUNITY-based participatory research; PHYSICIAN-patient relations; PHYSICIANS; ETHNIC groups; MIXED methods research; RETIREMENT communities
- Publication
Ethnicity & Disease, 2020, Vol 30, p137
- ISSN
1049-510X
- Publication type
journal article
- DOI
10.18865/ed.30.S1.137