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- Title
Out of many, one: integrating data in the paediatric cardiovascular environment.
- Authors
Bradley, David J.; Wu, Danny T. Y.; Goldberg, Caren S.; Serwer, Gerald S.; Lowery, Ray E.; Donohue, Janet E.; Hirsch-Romano, Jennifer C.; Zheng, Kai; Pasquali, Sara K.
- Abstract
Large volumes of data and multiple computing platforms are now universal components of paediatric cardiovascular medicine, but are in a constant state of evolution. Often, multiple sets of related data reside in disconnected “silos”, resulting in clinical, administrative, and research activities that may be duplicative, inefficient, and at times inaccurate. Comprehensive and integrated data solutions are needed to facilitate these activities across congenital heart centres. We describe methodology, key considerations, successful use cases, and lessons learnt in developing an integrated data platform across our congenital heart centre.
- Subjects
PEDIATRIC cardiology; ELECTRONIC health records; CONGENITAL heart disease in children; DATABASES; MEDICAL registries; CONGENITAL heart disease diagnosis; CONGENITAL heart disease; AMBULATORY electrocardiography; CARDIOLOGY; MAGNETIC resonance imaging; HEALTH outcome assessment; ACQUISITION of data; STANDARDS; THERAPEUTICS
- Publication
Cardiology in the Young, 2017, Vol 27, Issue 4, p757
- ISSN
1047-9511
- Publication type
journal article
- DOI
10.1017/S1047951116001268