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- Title
A Qualitative Inquiry of the Financial Concerns of Couples Opting to Use Preimplantation Genetic Diagnosis to Prevent the Transmission of Known Genetic Disorders.
- Authors
Drazba, Kathryn; Kelley, Michele; Hershberger, Patricia
- Abstract
Preimplantation genetic diagnosis (PGD) is an innovative prenatal testing option because the determination of whether a genetic disorder or chromosomal abnormality is evident occurs prior to pregnancy. However, PGD is not covered financially under the majority of private and public health insurance institutions in the United States, leaving couples to decide whether PGD is financially feasible. The aim of this qualitative study was to understand the role of finances in the decision-making process among couples who were actively considering PGD. In-depth, semi-structured interviews were completed with 18 genetic high-risk couples (36 individual partners). Grounded theory guided the analysis, whereby three themes emerged: 1) Cost is salient, 2) Emotions surrounding affordability, and 3) Financial burden and sacrifice. Ultimately, couples determined that the opportunity to avoid passing on a genetic disorder to a future child was paramount to the cost of PGD, but expressed financial concerns and recognized financial access as a major barrier to PGD utilization.
- Subjects
UNITED States; HUMAN reproductive technology; DECISION making; GROUNDED theory; HEALTH insurance; INTERVIEWING; RESEARCH methodology; PREIMPLANTATION genetic diagnosis; RESEARCH funding; QUALITATIVE research; SOCIOECONOMIC factors; THEMATIC analysis; DATA analysis software; DESCRIPTIVE statistics; ECONOMICS; PSYCHOLOGY
- Publication
Journal of Genetic Counseling, 2014, Vol 23, Issue 2, p202
- ISSN
1059-7700
- Publication type
Article
- DOI
10.1007/s10897-013-9638-7