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- Title
Burden assessment in caregivers of patients with home artificial nutrition: a need and a challenge.
- Authors
Villar-Taibo, R; Martínez-Olmos, M A; Bellido-Guerrero, D; Calleja-Fernández, A; Peinó-García, R; Martís-Sueiro, A; Camarero-González, E; Ríos-Barreiro, V; Cao-Sánchez, P; Durán-Martínez, R; Rodríguez-Iglesias, M-J; Rodríguez-Blanco, B; Rojo-Valdés, J; Martínez-Olmos, M A; Calleja-Fernández, A; Peinó-García, R; Martís-Sueiro, A; Camarero-González, E; Ríos-Barreiro, V; Cao-Sánchez, P
- Abstract
<bold>Background/objectives: </bold>Caregiving can be a stressful task with severe consequences on caregivers' health. Our aim was to evaluate the profile and the burden of caregivers of patients with home artificial nutrition (HAN) in our area.<bold>Subjects/methods: </bold>We conducted a prospective observational study of patients who had started HAN over a period of a year (n=573) and their home caregivers (n=103). Epidemiological characteristics of the patients and the type of HAN were registered. Caregivers' profile data (gender, age and degree of kinship) and Zarit Burden Assessments were recorded.<bold>Results: </bold>Care recipients had a median age of 79.0 (IQR 87) years, neurological and oncological diseases in 50% and a high rate of mobility limitations (80%). Oral supplements with high-calorie formulas were predominant (60%). The usual caregiver profile was a patient's daughter with a mean age of 53.1 (s.d. 13.4) years acting as the primary caregiver. Burden was absent in 49.5%, light in 18.4% and intense in 32% of caregivers. Intense burden was more frequent in oral over enteral nutrition (42% versus 22.6%; P=0.036). Supplementary nutrition was also associated with higher caregiver burden scores compared with complete diets. In patients with functional limitations, a tendency toward a slightly higher burden was observed. No differences in caregiver burden were detected according to other patient or caregiver characteristics.<bold>Conclusions: </bold>HAN type appears to be a factor influencing caregiver burden and therefore, evaluation of caregiver burden should be part of HAN programs.
- Subjects
HOME care services; NUTRITION &; psychology; PSYCHOLOGY of caregivers; ECONOMIC aspects of diseases; LONGITUDINAL method; PSYCHOLOGY
- Publication
European Journal of Clinical Nutrition, 2017, Vol 71, Issue 2, p192
- ISSN
0954-3007
- Publication type
journal article
- DOI
10.1038/ejcn.2016.239