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- Title
Suffering in long-term cancer survivors: an evaluation of the PRISM-R2 in a population-based cohort.
- Authors
Lehmann V; Oerlemans S; van de Poll-Franse LV; Vingerhoets AJ; Mols F; Lehmann, Vicky; Oerlemans, Simone; van de Poll-Franse, Lonneke V; Vingerhoets, Ad J J M; Mols, Floortje
- Abstract
<bold>Purpose: </bold>The Pictorial Representation of Illness and Self Measure-Revised 2 (PRISM-R2) has been developed as generic measure to assess suffering. The aim of this study was to evaluate the ability of this instrument to identify long-term cancer survivors with high levels of suffering who may need additional support.<bold>Methods: </bold>1299 cancer survivors completed the PRISM-R2, the Short Form Health Survey (SF-36), and the Quality of Life-Cancer Survivors questionnaire (QoL-CS). The PRISM-R2 distinguishes between the Self-Illness Separation (SIS) and Illness Perception Measure (IPM), both measuring aspects of suffering.<bold>Results: </bold>112 (9%) cancer survivors reported high suffering according to IPM. This group had a higher cancer stage at diagnosis, more cancer recurrences, more comorbidities, and were lower educated compared to people reporting less suffering. The PRISM-R2 could explain substantial amounts of variance (10-14%) in the psychological aspects of the SF-36 and QoL-CS. The IPM also discriminated statistically and clinically significant between high- and low-health status.<bold>Conclusion: </bold>The PRISM-R2 proved to be able to discriminate between individuals with good and deteriorated levels of QoL. Further evaluation of its validity and screening potential is recommended.
- Publication
Quality of Life Research, 2011, Vol 20, Issue 10, p1645
- ISSN
0962-9343
- Publication type
journal article
- DOI
10.1007/s11136-011-9911-x