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- Title
Awareness, Acceptance, Avoidance: Home Care Aides' Approaches to Death and End-of-Life Care.
- Authors
Tsui, Emma K.; Reckrey, Jennifer M.; Franzosa, Emily; LaMonica, Marita; Gassama, Seedoumuktar; Boerner, Kathrin
- Abstract
Death and dying are woven throughout the work of home care aides, and yet the care they provide at the end of life (EOL) remains poorly understood. This is due in part to the multiple circumstances under which aides provide EOL care. In this paper, we elucidate the EOL care experiences of aides working in home care agencies in New York City. We conducted in-depth interviews with 29 home care aides, and we analyzed these data using inductive, team-based methods. Our findings show that aides may not be aware of or accept a client's EOL status, and they may avoid EOL care. These conditions shape EOL care, and we detail the committed forms of care aides provide when they are aware and accepting. We recommend improved training, support systems, and policy change to enhance aides' contributions to EOL care, while protecting aides' health and well-being.
- Subjects
NEW York (State); HEALTH literacy; POLICY sciences; DEATH; MEDICAL quality control; RESEARCH funding; INTERVIEWING; WORK experience (Employment); ANXIETY; TERMINAL care; COMMITMENT (Psychology); NATIONAL competency-based educational tests; PROFESSIONAL competence; INDUSTRIAL hygiene; WELL-being
- Publication
Omega: Journal of Death & Dying, 2024, Vol 89, Issue 2, p550
- ISSN
0030-2228
- Publication type
Article
- DOI
10.1177/00302228221078348