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- Title
Youth Weigh In: Views on Advanced Neurotechnology for Drug-Resistant Epilepsy.
- Authors
Udwadia, Farhad R.; McDonald, Patrick J.; Connolly, Mary B.; Hrincu, Viorica; Illes, Judy
- Abstract
Background: Epilepsy affects over 500,000 children in North America of whom 30% have drug-resistant epilepsy. Advancements with neurotechnologies show promising benefits, but the perceptions of these procedures by youth is unknown. Methods: We conducted semistructured interviews with 10 youth in British Columbia, Canada who underwent procedures for drug-resistant epilepsy involving different forms of neurotechnology (subdural grids, vagus nerve stimulation, responsive neurostimulation). Interviews were analyzed using the constant comparative qualitative method. Results: Four major thematic categories emerged from the interviews. Treatment values, impact of the disorder, personal context, and impact of neurotechnology. Conclusions: Besides the predictable goal of seizure reduction, a desire for autonomy and the importance of trust in the medical team emerged as dominant values within the 4 thematic categories that were explicit to the use of new neurotechnologies for the management of drug-resistant epilepsy.
- Subjects
BRITISH Columbia; NORTH America; EPILEPSY; NEURAL stimulation; VAGUS nerve; SEMI-structured interviews; COMPARATIVE method; TEMPORAL lobectomy
- Publication
Journal of Child Neurology, 2021, Vol 36, Issue 2, p128
- ISSN
0883-0738
- Publication type
Article
- DOI
10.1177/0883073820957810