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- Title
The impact of a spiritual legacy intervention in patients with brain cancers and other neurologic illnesses and their support persons.
- Authors
Piderman, Katherine M.; Radecki Breitkopf, Carmen; Jenkins, Sarah M.; Lapid, Maria I.; Kwete, Gracia M.; Sytsma, Terin T.; Lovejoy, Laura A.; Yoder, Timothy J.; Jatoi, Aminah
- Abstract
<bold>Objective: </bold>The objectives were to assess the feasibility of using a novel, comprehensive chaplain-led spiritual life review interview to develop a personal Spiritual Legacy Document (SLD) for persons with brain tumors and other neurodegenerative diseases and to describe spiritual well-being (SWB), spiritual coping, and quality of life (QOL) of patients and their support persons (SP) before and after receipt of the SLD.<bold>Methods: </bold>Patient-SP pairs were enrolled over a 2-year period. Assessments included the Functional Assessment of Chronic Illness Therapy-Spiritual Expanded Version, Brief Religious Coping Scale, Brief COPE Inventory, and QOL Linear Analog Scale. Baseline assessments were completed prior to an audio-recorded spiritual life review interview with a chaplain.<bold>Results: </bold>Thirty-two patient/SP pairs were enrolled; 27 completed baseline assessments and the interview. Twenty-four reviewed their SLD and were eligible for follow-up. A total of 15 patients and 12 SPs completed the 1-month follow-up; 10 patients and seven SPs completed the 3-month follow-up. Patients endorsed high levels of SWB and spiritual coping at baseline. Both patients and SPs evidenced improvement on several aspects of SWB, spiritual coping, and QOL at 1 month, but patients' decreased financial well-being was also observed. Patients and SPs demonstrated favorable changes in peacefulness and positive religious coping at both time points.<bold>Conclusions: </bold>A chaplain-led spiritual life review is a feasible intervention for patients with neurodegenerative disease and results in beneficial effects on patients and SPs. Copyright © 2015 John Wiley & Sons, Ltd.
- Subjects
BRAIN cancer patients; TUMORS; BRAIN tumors; BRAIN tumor treatment; MENTAL health; QUALITY of life; ADAPTABILITY (Personality); RELIGION &; medicine; PSYCHOLOGY &; religion; QUESTIONNAIRES; SPIRITUALITY; PILOT projects; SOCIAL support; PSYCHOLOGY
- Publication
Psycho-Oncology, 2017, Vol 26, Issue 3, p346
- ISSN
1057-9249
- Publication type
journal article
- DOI
10.1002/pon.4031