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- Title
Development of a Liver Transplant Registry System Based on Minimum Data Set.
- Authors
Aliakbarian, M.; Eslami, S.; Tohidinezhad, F.
- Abstract
Background: Liver transplantation (LT), as the premier treatment for end-stage liver disease, has led to a phenomenal outcome improvement among predisposed population. Providing an analytical platform is essential for short- and long-term monitoring of its repercussion in outcomes. Objective: To describe design and rational for the implemented an LT Registry. Methods: Liver transplant professionals from Namazi and Montaserieh Transplant Centers were asked to score 124 items provided by reviewing literature and paper-based medical records. A data item was included into registry's database if 4 out of 7 or more raters scored the item 4 or 5 on a 5-point Likert scale. To demonstrate experts' opinion consistency Cronbach's a was calculated for each data category. As raw data were being entered, range and consistency validation checks guaranteed data accuracy and consistency in the database. Moreover, a GUI with patient history visualization, screening tests' reminders and automatic survival calculation utilities has been chained to the database for more effective data representation. Results: Seven participants (5 transplant surgeons, 1 internist, and 1 coordinator GP) made consensus on 87 items (10 clinical history, α=0.92; 27 laboratory, α=0.86; 3 death, α=0.85; 6 socio-demographic, α=.77; 5 donor, α=0.76; 10 (peri-)operative, α=0.75; 13 supplementary consultation, α=0.74; and 13 complications, α=0.71). Conclusion: The implementation of the computerized LT registry was just the initial and essential step of an endeavor to continue improvements in the quality of care within our service. However, further assessments are required to assure long-term quality of the obtained data and its decision support effectiveness.
- Subjects
LIVER transplantation; LIVER disease treatment; TRANSPLANTATION of organs, tissues, etc.
- Publication
International Journal of Organ Transplantation Medicine, 2016, Vol 7, Issue 2, p126
- ISSN
2008-6490
- Publication type
Abstract