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"A Double-Edged Sword": A Brief History of Genomic Data Governance and Genetic Researcher Perspectives on Data Sharing.
- Published in:
- Journal of Law, Medicine & Ethics, 2024, v. 52, n. 2, p. 399, doi. 10.1017/jme.2024.123
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- Publication type:
- Article
Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation.
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- Journal of Personalized Medicine, 2021, v. 11, n. 7, p. 646, doi. 10.3390/jpm11070646
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- Publication type:
- Article
Pediatric Oncologists' Experiences Returning and Incorporating Genomic Sequencing Results into Cancer Care.
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- Journal of Personalized Medicine, 2021, v. 11, n. 6, p. 570, doi. 10.3390/jpm11060570
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- Publication type:
- Article
Public mental health during and after the SARS-CoV-2 pandemic: Opportunities for intervention via emotional self-efficacy and resilience.
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- Frontiers in Psychology, 2023, v. 14, p. 01, doi. 10.3389/fpsyg.2023.1016337
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- Publication type:
- Article
Psychological Distress Among the U.S. General Population During the COVID-19 Pandemic.
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- Frontiers in Psychiatry, 2021, v. 12, p. 1, doi. 10.3389/fpsyt.2021.642918
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- Article
A Typology of Shared Decision Making, Informed Consent, and Simple Consent.
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- Annals of Internal Medicine, 2004, v. 140, n. 1, p. 54, doi. 10.7326/0003-4819-140-1-200401060-00012
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- Publication type:
- Article
Do privacy and security regulations need a status update? Perspectives from an intergenerational survey.
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- PLoS ONE, 2017, v. 12, n. 9, p. 1, doi. 10.1371/journal.pone.0184525
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- Publication type:
- Article
Taking DNA from the dead.
- Published in:
- 2010
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- Publication type:
- journal article
Personalized genomic information: preparing for the future of genetic medicine.
- Published in:
- 2010
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- Publication type:
- review
Research ethics and the challenge of whole-genome sequencing.
- Published in:
- 2008
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- Publication type:
- research
ASSESSING THE UTILITY OF CLINICAL TUMOR SEQUENCING IN THE PEDIATRIC NEURO-ONCOLOGY CLINIC.
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- Neuro-Oncology, 2014, v. 16, n. suppl_3, p. iii24, doi. 10.1093/neuonc/nou208.5
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- Publication type:
- Article
Should Pediatricians Dismiss Families Who Refuse a COVID-19 Vaccine?
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- Clinical Pediatrics, 2022, v. 61, n. 2, p. 99, doi. 10.1177/00099228211065258
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- Publication type:
- Article
Predispositional genome sequencing in healthy adults: design, participant characteristics, and early outcomes of the PeopleSeq Consortium.
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- Genome Medicine, 2019, v. 11, n. 1, p. N.PAG, doi. 10.1186/s13073-019-0619-9
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- Publication type:
- Article
Participants and Study Decliners’ Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing.
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- Journal of Empirical Research on Human Research Ethics, 2016, v. 11, n. 1, p. 21, doi. 10.1177/1556264615624078
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- Publication type:
- Article
PARTICIPANTS' RECALL AND UNDERSTANDING OF GENOMIC AND LARGE-SCALE DATA SHARING RESEARCH.
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- Journal of Empirical Research on Human Research Ethics, 2013, v. 8, n. 4, p. 42, doi. 10.1525/jer.2013.8.4.42
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- Publication type:
- Article
PERSPECTIVES ON HUMAN MICROBIOME RESEARCH ETHICS.
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- Journal of Empirical Research on Human Research Ethics, 2012, v. 7, n. 3, p. 1, doi. 10.1525/jer.2012.7.3.1
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- Publication type:
- Article
Breaching Patient Confidentiality: A Study of Physician Assistants' Awareness and Attitudes.
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- Journal of Physician Assistant Education (Physician Assistant Education Association), 2007, v. 18, n. 2, p. 20, doi. 10.1097/01367895-200718020-00005
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- Publication type:
- Article
Essential, not peripheral: Addressing health care workers' mental health concerns during the COVID‐19 pandemic.
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- Journal of Occupational Health, 2020, v. 62, n. 1, p. 1, doi. 10.1002/1348-9585.12169
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- Publication type:
- Article
Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?
- Published in:
- 2019
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- Publication type:
- journal article
Research Ethics Recommendations for Whole-Genome Research: Consensus Statement.
- Published in:
- PLoS Biology, 2008, v. 6, n. 3, p. e73, doi. 10.1371/journal.pbio.0060073
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- Publication type:
- Article
Pregnant patients' risk perception of prenatal test results with uncertain fetal clinical significance: ultrasound versus advanced genetic testing.
- Published in:
- 2015
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- Publication type:
- journal article
Do recent US Supreme Court rulings on patenting of genes and genetic diagnostics affect the practice of genetic screening and diagnosis in prenatal and reproductive care?
- Published in:
- Prenatal Diagnosis, 2014, v. 34, n. 10, p. 921, doi. 10.1002/pd.4445
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- Publication type:
- Article
An Ethics Framework for Evaluating Ownership Practices in Biomedical Citizen Science.
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- Citizen Science: Theory & Practice, 2022, v. 7, n. 1, p. 1, doi. 10.5334/cstp.537
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- Publication type:
- Article
Developing an Ethics and Policy Framework for Psychedelic Clinical Care: A Consensus Statement.
- Published in:
- JAMA Network Open, 2024, v. 7, n. 6, p. e2414650, doi. 10.1001/jamanetworkopen.2024.14650
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- Publication type:
- Article
Genetic Researchers' Use of and Interest in Research With Diverse Ancestral Groups.
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- JAMA Network Open, 2024, v. 7, n. 4, p. e246805, doi. 10.1001/jamanetworkopen.2024.6805
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- Publication type:
- Article
Parental Attitudes Toward Standard Newborn Screening and Newborn Genomic Sequencing: Findings From the BabySeq Study.
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- Frontiers in Genetics, 2022, v. 13, p. 1, doi. 10.3389/fgene.2022.867371
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- Publication type:
- Article
Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections.
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- American Journal of Public Health, 2016, v. 106, n. 1, p. 40, doi. 10.2105/AJPH.2015.302940
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- Publication type:
- Article
Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project: A Randomized Clinical Trial.
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- JAMA Pediatrics, 2021, v. 175, n. 11, p. 1132, doi. 10.1001/jamapediatrics.2021.2829
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- Publication type:
- Article
A One-Page Summary Report of Genome Sequencing for the Healthy Adult.
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- Public Health Genomics, 2015, v. 18, n. 2, p. 123, doi. 10.1159/000370102
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- Publication type:
- Article
Health System Implications of Direct-to-Consumer Personal Genome Testing.
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- Public Health Genomics, 2011, v. 14, n. 1, p. 53, doi. 10.1159/000321962
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- Publication type:
- Article
Beyond Breaking Bad News: The Roles of Hope and Hopefulness.
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- Cancer (0008543X), 2008, v. 113, n. 2, p. 442, doi. 10.1002/cncr.23588
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- Publication type:
- Article
Beneficent Persuasion: Techniques and Ethical Guidelines to Improve Patients' Decisions.
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- Annals of Family Medicine, 2010, v. 8, n. 3, p. 260, doi. 10.1370/afm.1118
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- Publication type:
- Article
Are Psychedelic Experiences Transformative? Can We Consent to Them?
- Published in:
- Perspectives in Biology & Medicine, 2024, v. 67, n. 1, p. 143, doi. 10.1353/pbm.2024.a919716
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- Publication type:
- Article
Bio-Psycho-Spiritual Perspectives on Psychedelics: Clinical and Ethical Implications.
- Published in:
- Perspectives in Biology & Medicine, 2024, v. 67, n. 1, p. 117, doi. 10.1353/pbm.2024.a919715
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- Publication type:
- Article
Ventilator Triage Policies During the COVID-19 Pandemic at U.S. Hospitals Associated With Members of the Association of Bioethics Program Directors.
- Published in:
- 2020
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- Publication type:
- journal article
The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine.
- Published in:
- Trials, 2014, v. 15, n. 1, p. 85, doi. 10.1186/1745-6215-15-85
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- Article
The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine.
- Published in:
- 2014
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- Publication type:
- journal article
Ethical and Legal Challenges Associated with Public Molecular Autopsies.
- Published in:
- Journal of Law, Medicine & Ethics, 2016, v. 44, n. 2, p. 309, doi. 10.1177/1073110516654124
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- Publication type:
- Article
Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject.
- Published in:
- Journal of Law, Medicine & Ethics, 2015, v. 43, n. 3, p. 529, doi. 10.1111/jlme.12295
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- Publication type:
- Article
Clinical Integration of Next Generation Sequencing: A Policy Analysis.
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- Journal of Law, Medicine & Ethics, 2014, v. 42, p. 5, doi. 10.1111/jlme.12158
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- Publication type:
- Article
Currents in Contemporary Bioethics.
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- Journal of Law, Medicine & Ethics, 2012, v. 40, n. 4, p. 1040, doi. 10.1111/j.1748-720X.2012.00731.x
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- Publication type:
- Article
Currents in Contemporary Ethics.
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- Journal of Law, Medicine & Ethics, 2009, v. 37, n. 2, p. 369, doi. 10.1111/j.1748-720X.2009.00380.x
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- Publication type:
- Article
Currents in Contemporary Ethics.
- Published in:
- Journal of Law, Medicine & Ethics, 2006, v. 34, n. 4, p. 809, doi. 10.1111/j.1748-720X.2006.00100.x
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- Publication type:
- Article
The Ethical Health Lawyer.
- Published in:
- Journal of Law, Medicine & Ethics, 2005, v. 33, n. 3, p. 603, doi. 10.1111/j.1748-720X.2005.tb00523.x
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- Publication type:
- Article
Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi.
- Published in:
- Journal of Law & the Biosciences, 2023, v. 10, n. 2, p. 1, doi. 10.1093/jlb/lsad022
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- Publication type:
- Article
Four misconceptions about investigative genetic genealogy.
- Published in:
- Journal of Law & the Biosciences, 2021, v. 8, n. 1, p. 1, doi. 10.1093/jlb/lsab001
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- Publication type:
- Article
Constraints on gene patent protection fuel secrecy concerns: a qualitative study.
- Published in:
- Journal of Law & the Biosciences, 2017, v. 4, n. 3, p. 542, doi. 10.1093/jlb/lsx034
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- Publication type:
- Article
Clearing complexity from the Common Rule NPRM.
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- Journal of Law & the Biosciences, 2016, v. 3, n. 2, p. 257, doi. 10.1093/jlb/lsw026
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- Publication type:
- Article
It depends whose data are being shared: considerations for genomic data sharing policies.
- Published in:
- Journal of Law & the Biosciences, 2015, v. 11, n. 1, p. 697, doi. 10.1093/jlb/lsv030
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- Publication type:
- Article
Beyond Shared Decision Making: An Expanded Typology of Medical Decisions.
- Published in:
- Medical Decision Making, 2008, v. 28, n. 5, p. 699, doi. 10.1177/0272989X08318465
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- Publication type:
- Article