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- Title
Role of Advance Care Planning in Proxy Decision Making Among Individuals With Dementia and Their Family Caregivers.
- Authors
Jung Kwak; De Larwelle, Jessica A.; O'Connell Valuch, Katharine; Kesler, Toni
- Abstract
Health care proxies make important end-of-life decisions for individuals with dementia. A cross-sectional survey was conducted to examine the role of advance care planning in proxy decision making for 141 individuals with cognitive impairment, Alzheimer's disease, or other types of dementia. Proxies who did not know the preferences of individuals with dementia for life support treatments reported greater understanding of their values. Proxies of individuals with dementia who did not want life support treatments anticipated receiving less support and were more uncertain in decision making. The greater knowledge proxies had about dementia trajectory, family support, and trust of physicians, the more informed, clearer, and less uncertain they were in decision making. In addition to advance care planning, multiple factors influence proxy decision making, which should be considered in developing interventions and future research to support informed decision making for individuals with dementia and their families.
- Subjects
WISCONSIN; CAREGIVERS; STATISTICAL correlation; DECISION making; DEMENTIA; LIFE support systems in critical care; PATIENT-family relations; MEDICAL personnel; PEOPLE with intellectual disabilities; PROXY; RESEARCH funding; SCALE analysis (Psychology); SURVEYS; ADVANCE directives (Medical care); EMPIRICAL research; MULTIPLE regression analysis; CROSS-sectional method; PATIENTS' families; DATA analysis software; DESCRIPTIVE statistics
- Publication
Research in Gerontological Nursing, 2017, Vol 10, Issue 2, p72
- ISSN
1940-4921
- Publication type
Article
- DOI
10.3928/19404921-20150522-06