We found a match
Your institution may have access to this item. Find your institution then sign in to continue.
- Title
Feasibility and Acceptability of the Promoting Resilience in Stress Management-Parent (PRISM-P) Intervention for Caregivers of Children with Craniofacial Conditions.
- Authors
Fladeboe, Kaitlyn M.; Stock, Nicola Marie; Heike, Carrie L.; Evans, Kelly N.; Junkins, Courtney; Stueckle, Laura; O'Daffer, Alison; Rosenberg, Abby R.; Yi-Frazier, Joyce P.
- Abstract
Objectives: Few evidence-based psychosocial programs exist within craniofacial care. This study (a) assessed feasibility and acceptability of the Promoting Resilience in Stress Management-Parent (PRISM-P) intervention among caregivers of children with craniofacial conditions and (b) described barriers and facilitators of caregiver resilience to inform program adaptation. Design: In this single-arm cohort study, participants completed a baseline demographic questionnaire, the PRISM-P program, and an exit interview. Participants: Eligible individuals were English-speaking legal guardians of a child <12-years-old with a craniofacial condition. Intervention: PRISM-P included 4 modules (stress-management, goal-setting, cognitive-restructuring, meaning-making) delivered in 2 one-on-one phone or videoconference sessions 1–2 weeks apart. Main Outcome Measures: Feasibility was defined as >70% program completion among enrolled participants; acceptability was defined as >70% willingness to recommend PRISM-P. Intervention feedback and caregiver-perceived barriers and facilitators of resilience were summarized qualitatively. Results: Twenty caregivers were approached and 12 (60%) enrolled. The majority were mothers (67%) of a child <1-year-old diagnosed with a cleft lip and/or palate (83%) or craniofacial microsomia (17%). Of these, 8 (67%) completed PRISM-P and 7 (58%) completed interviews; 4 (33%) were lost-to-follow-up before PRISM-P and 1 (8%) before the interview. Feedback was highly positive, with 100% willing to recommend PRISM-P. Perceived barriers to resilience included uncertainty about their child's health; facilitators included social support, parental identity, knowledge, and control. Conclusions: PRISM-P was acceptable among caregivers of children with craniofacial conditions but not feasible based on program completion rates. Barriers and facilitators of resilience support the appropriateness of PRISM-P for this population and inform adaptation.
- Subjects
PSYCHOLOGICAL resilience; COGNITIVE restructuring therapy; LIFE; HEALTH literacy; STRESS management; QUALITATIVE research; GROUP identity; EVALUATION of human services programs; QUESTIONNAIRES; INTERVIEWING; GOAL (Psychology); PARENT attitudes; UNCERTAINTY; LONGITUDINAL method; ATTITUDE (Psychology); QUALITY of life; CRANIOFACIAL abnormalities; PARENTS of children with disabilities; PSYCHOLOGY of caregivers; HEALTH promotion; SOCIAL support; PSYCHOSOCIAL factors; CAREGIVER attitudes; PATIENT participation
- Publication
Cleft Palate Craniofacial Journal, 2024, Vol 61, Issue 7, p1125
- ISSN
1055-6656
- Publication type
Article
- DOI
10.1177/10556656231157449