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- Title
Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease.
- Authors
Souza de Santana Carvalho, Evanilda; Moreira Carneiro, Jayanne; Silva Gomes, Aline; Santana Freitas, Katia; Jenerette, Coretta Melissa
- Abstract
Objectives: to analyze the characteristics of stigma in the interactions of people with pain and sickle cell disease and the coping strategies adopted. Methods: qualitative study, conducted in Bahia's reference units between January and July 2018. In-depth interviews were applied to 25 adults, followed by content analysis and interpretation in light of the Sociological Theory of Stigma. Results: four categories emerged from the data: Stigma in interactions with family members; Stigma in interactions with people in the general public; Stigma in interactions with health workers; and Strategies for coping with stigma. Final Considerations: in the participants' interactions, stigma produced discrediting pain reports, labeling and stereotyping, blaming patients for not improving their health, discrimination, racism, inadequate pain assessment, and delay in care. Coping included silencing, covering up, aggressive behavior, exposure to risk, reading religious texts and praises, and church attendance.
- Subjects
BRAZIL; RACISM; LABELING theory; PAIN measurement; DISCRIMINATION (Sociology); SOCIAL stigma; INTERVIEWING; PATIENTS' attitudes; QUALITATIVE research; INTERPERSONAL relations; RESEARCH funding; PSYCHOLOGICAL adaptation; CONTENT analysis; FAMILY relations; THEMATIC analysis; SICKLE cell anemia; PAIN management; RELIGION; PRAISE; CHURCH buildings
- Publication
Revista Brasileira de Enfermagem, 2021, Vol 74, Issue 3, p1
- ISSN
0034-7167
- Publication type
Article
- DOI
10.1590/0034-7167-2020-0831