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- Title
On the importance of intellectual property rights for e-science and the integrated health record.
- Authors
D'Agostino, Giuseppina; Hinds, Chris; Jirotka, Marina; Meyer, Charles; Piper, Tina; Rahman, Mustafizur; Vaver, David
- Abstract
An integrated health record (IHR) that enables clinical data to be shared at a national level has profound implications for medical research. Data that have been useful primarily within a single clinic will instead be free to move rapidly around a national network infrastructure. This raises challenges for technologists, clinical practice, and for the governance of these data. This article considers one specific issue that is currently poorly understood: how intellectual property (IP) relates to the sharing of medical data for research on large-scale electronic networks. Based on an understanding of current practices, this article presents recommendations for the governance of IP in an integrated health record.
- Subjects
INTELLECTUAL property; PROPERTY rights; MEDICAL records; MEDICAL research; CASE studies; MEDICAL electronics; COMPUTER networks; INFORMATION technology; CLINICAL medicine
- Publication
Health Informatics Journal, 2008, Vol 14, Issue 2, p95
- ISSN
1460-4582
- Publication type
Article
- DOI
10.1177/1081180X08089318