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- Title
The Academic and Psychosocial Impacts of Ehlers-Danlos Syndrome on Postsecondary Students: An Integrative Review of the Literature.
- Authors
Giroux, Catherine M.; Corkett, Julie K.; Carter, Lorraine M.
- Abstract
Ehlers-Danlos Syndrome (EDS) is a complex, often invisible, connective tissue disorder that has arguably profound psychosocial and academic impact on postsecondary students. It is an underdiagnosed and misunderstood condition that is the focus of little research, particularly within the social sciences. Several factors influence the academic experiences of postsecondary students with EDS, including institutional issues, faculty attitudes, accommodations, school attendance, and technology use. Psychosocially, adjusting to new or changing diagnoses, dealing with the stigmas and misperceptions of others, and the ongoing identity formation of youth are major factors for students. Since there is a notable shortfall in academic literature with the specific focus of EDS in postsecondary education, this review draws from the peripheral fields of chronic illness and disability studies for support.
- Subjects
EHLERS-Danlos syndrome; PSYCHOSOCIAL factors; COLLEGE students with disabilities; POSTSECONDARY education; LITERATURE reviews
- Publication
Journal of Postsecondary Education & Disability, 2016, Vol 29, Issue 4, p407
- ISSN
2379-7762
- Publication type
Article