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- Title
Developing quality criteria for patient‐directed knowledge tools related to clinical practice guidelines. A development and consensus study.
- Authors
van der Weijden, Trudy; Dreesens, Dunja; Faber, Marjan J.; Bos, Nanne; Drenthen, Ton; Maas, Ingrid; Kersten, Sonja; Malanda, Uriëll; van der Scheur, Sander; Post, Heleen; Knops, Anouk
- Abstract
Background: Patient‐directed knowledge tools such as patient versions of guidelines and patient decision aids are increasingly developed to facilitate shared decision making. In this paper, we report how consensus was reached within the Netherlands on quality criteria for development, content and governance of these tools. Method: A 12‐month development and consensus study. The consortium worked on four work packages: (a) reviewing existing criteria; (b) drafting the quality criteria; (c) safe‐guarding the acceptability and feasibility of the draft criteria by participatory research in on‐going tool development projects; and (d) gaining formal support from national stakeholders on the quality criteria. Results: We reached consensus on a 8‐step guidance; describing minimal quality criteria for (a) the team composition; (b) setting the scope; (c) identifying needs; (d) the content and format; (e) testing the draft; (f) finalizing and approval; (g) dissemination and application, and (h) ownership and revision. The participants of the on‐going tool development projects were positive about the quality criteria in general, but divided as to the degree of detail. Whereas some expressed a clear desire for procedural standards, others felt that it would be sufficient to provide only general directions. Despite the different views as to the degree of detail, consensus was reached in three stakeholder meetings. Discussion: We successfully collaborated with all stakeholders and achieved formal support from national stakeholders on a set of minimum criteria for the development process, content and governance of patient‐directed knowledge tools.
- Subjects
NETHERLANDS; CONSENSUS (Social sciences); DECISION making; EXPERIMENTAL design; RESEARCH methodology; MEDICAL protocols; INFORMATION resources; PATIENT participation; HEALTH literacy; PATIENT decision making
- Publication
Health Expectations, 2019, Vol 22, Issue 2, p201
- ISSN
1369-6513
- Publication type
Article
- DOI
10.1111/hex.12843