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- Title
Adapting to the burdens of care: a telehealth program for cancer survivors with ostomies.
- Authors
Rock, Matthew C.; Cidav, Zuleyha; Sun, Virginia; Ercolano, Elizabeth; Hornbrook, Mark C.; Wendel, Christopher S.; Mo, Julia; Fellheimer, Harrison; McCorkle, Ruth; Holcomb, Michael; Grant, Marcia; Weinstein, Ronald S.; Krouse, Robert S.
- Abstract
Purpose: An ostomy introduces to cancer survivors new demands for self-care and healthcare resource use. A curriculum that teaches ostomates self-management skills may affect survivors' use of resources. Methods: A prospective randomized trial comparing usual care (UC) with an Ostomy Self-Management Training (OSMT) program delivered by telehealth was conducted in patients with ostomies due to cancer. The intervention occurred over 5 weeks with survey administration at baseline, program completion, and 6 months after completion. Quantitative data were analyzed using a mixed-effects logistic model to predict mean values of resource and service use. Responses to the open-ended question were coded and analyzed with directed content analysis. Results: One hundred and sixty-seven subjects (89 in the OSMT arm and 78 in the UC arm) completed the questionnaire at all time points. The changes in likelihoods of emptying one's ostomy bag > 8 times/week and of incurring any out-of-pocket costs on accessories were 14% greater for the intervention group (p =.029 and p =.063, respectively). Qualitative analysis reveals among the OSMT arm an increase in the proportion of ostomy-specific comments and a decrease in the same metric among the UC arm. Common themes included learning to work with equipment, dealing with gas build-up and finding well-fitting clothing. Conclusions: There are some indications that participants in this structured telehealth program are more active in ostomy self-care. The reported ostomy self-care activities, healthcare consumables, and healthcare services reported by both groups illustrate the complexity of survivorship care following ostomy surgery. National Clinical Trial Identifier: NCT02974634.
- Subjects
TELEMEDICINE; CANCER survivors; OSTOMY; OPERATIVE surgery; MEDICAL telematics
- Publication
Supportive Care in Cancer, 2023, Vol 31, Issue 1, p1
- ISSN
0941-4355
- Publication type
Article
- DOI
10.1007/s00520-022-07461-0