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- Title
Mothers as Caregivers of Children with Hydrocephalus: Struggles in Poverty and Compassion.
- Authors
ADIPUTRA, BIO ADHA; SOESILO, ALOYSIUS
- Abstract
Hydrocephalus is a heterogeneous and complex condition in terms of its pathogenesis, symptoms and psychological implications for the sufferers and their families. Having a child with hydrocephalus in the midst of low economic conditions is a complex journey for a caregiver. This qualitative research with a phenomenological approach focused on the subjective or psychological experience of mothers as the primary caregiver for children with hydrocephalus. From a social foundation engaged in support for hydrocephalus, two participants were recruited with low socioeconomic status and were able to articulate their subjective experiences from the moment they discovered their child had hydrocephalus to their daily involvement in providing care within economic constraints. Results showed that in order to survive and accept reality, the two participants and their respective husband must experience not only personal, but also communal or social emotional struggles So far, they had been able to maintain care for their child with hydrocephalus owing to social support from fellow parents and family.
- Subjects
HYDROCEPHALUS in children; MOTHERS; CAREGIVERS; POVERTY; COMPASSION
- Publication
INSAN: Jurnal Psikologi dan Kesehatan Mental, 2022, Vol 7, Issue 2, p116
- ISSN
2528-0104
- Publication type
Article
- DOI
10.20473/jpkm.v7i22022.116-144