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- Title
End-of-life care in the patient's home.
- Authors
Manyimo, Pretty; de Vries, Kay
- Abstract
Background: Providing end-of-life care in a patient's home is challenging, especially if the nurse is from a different ethnic background from the patient. Evidence shows that people from an ethnic minority background often experience poorer end-of-life care due to care providers not understanding their care needs. Aim: To explore the experiences of community nursing staff caring for patients with an ethnic minority background at the end of their life. Method: Using a qualitative descriptive approach, 16 semi-structured interviews were conducted and the data was thematically analysed. Finding: Participants dealt with large tight-knit families, paternalism and controlling behaviours. There was a mistrust of Western palliative medicine. Language barriers and challenges were faced by the nursing staff, resulting in difficult conversations with the families. Different levels of the nursing staff's spiritual/cultural competencies were also identified. The COVID-19 pandemic intensified the challenges. Conclusion: This research has shed light on the challenges of individualising end-of-life care in a culturally diverse community in the UK. The nursing staff's cultural/spiritual competencies were challenged.
- Subjects
UNITED Kingdom; TERMINAL care; PATERNALISM; HOME care services; RESEARCH methodology; COMMUNICATION barriers; CONVERSATION; COMMUNITY health services; INTERVIEWING; QUALITATIVE research; PALLIATIVE medicine; HOSPITAL nursing staff; CULTURAL competence; THEMATIC analysis
- Publication
International Journal of Palliative Nursing, 2023, Vol 29, Issue 11, p528
- ISSN
1357-6321
- Publication type
Article
- DOI
10.12968/ijpn.2023.29.11.528