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- Title
Perspectives of elders and their adult children of Black and minority ethnic heritage on end-of-life conversations: A meta-ethnography.
- Authors
De Souza, Joanna; Gillett, Karen; Froggatt, Katherine; Walshe, Catherine
- Abstract
Background: People of Black and minority ethnic heritage are more likely to die receiving life supporting measures and less likely to die at home. End-of-life care decision making often involves adult children as advance care planning is uncommon in these communities. Physicians report family distress as being a major factor in continuing with futile care. Aim: To develop a deeper understanding of the perspectives of elders of Black and minority ethnic heritage and their children, about end-of-life conversations that take place within the family, using a meta-ethnographic approach Design: Systematic interpretive exploration using the process of meta-ethnography was utilised. Data sources: CINAHL, MEDLINE, PubMed and PsycINFO databases were searched. Inclusion criteria included studies published between 2005 and 2019 and studies of conversations between ethnic minority elders and family about end-of-life care. Citation snowballing was used to ensure all appropriate references were identified. A total of 13 studies met the inclusion criteria and required quality level using Critical Appraisal Skills Programme. Results: The following four storylines were constructed: 'My family will carry out everything for me; it is trust'; 'No Mum, don't talk like that'; 'I leave it in God's hands'; and 'Who's going to look after us?' The synthesis reflected the dichotomous balance of trust and burden avoidance that characterises the perspectives of Black and minority ethnic elders to end-of-life care planning with their children.
- Subjects
BLACK people; CINAHL database; CONVERSATION; ETHNIC groups; PSYCHOLOGY information storage &; retrieval systems; MEDLINE; ONLINE information services; TERMINAL care; SYSTEMATIC reviews; ADVANCE directives (Medical care); ATTITUDES toward death; FAMILY relations; PATIENTS' attitudes; FAMILY attitudes
- Publication
Palliative Medicine, 2020, Vol 34, Issue 2, p195
- ISSN
0269-2163
- Publication type
Article
- DOI
10.1177/0269216319887070